It took 4 years for this Tongue-Reduction post. Not because it wasn’t important, but due to the emotions that are brought up when watching the videos or seeing the pictures from his surgery. It was a time in our life that I wanted to forget because it was painful to watch him go through it. But, I also think it is important to remember our journey. We have only come this far as a family through God’s grace and loving hands guiding us and strengthening us.

“Fear not for I am with you, be not dismayed, for I am your God.
I will strengthen you, I will help you;
I will uphold you with my righteous right hand” -Isaiah 41:10

And to my BWS family, I hope this video will bring comfort to those struggling with the decision of a Tongue Reduction (glossectomy) surgery. Some of the photos are graphic post-surgery, but I promise, the results are astonishing. We are so thankful for his surgery which allowed Jake to eat, breathe, and talk like any other kid. I truly believe BWS stands for: Babies With Strength!

Please feel free to ask any questions you may have regarding the surgery. You can also visit our website to read more about our journey with Beckwith-Wiedeman Syndrome: www.mybwsbaby.com

Online: http://www.beckwithwiedemann.org/
Facebook: https://www.facebook.com/BWCFI

Online: http://www.beckwithwiedemann.org/
Facebook: https://www.facebook.com/BWCFI

Online: http://www.beckwithwiedemann.org/
Facebook: https://www.facebook.com/BWCFI

Beckwith-Wiedemann Syndrome BWS - HOWBIGBWS BWS Awareness. For more information visit http://www.howbigbws.com

What is Beckwith-Wiedemann Syndrome?

Beckwith Wiedemann Syndrome is a congenital overgrowth disorder usually present at birth. BWS is characterized by large body size, enlarged organs, macroglossia (enlarged tongue), midline abdominal wall defects (omphalocele/exomphalos, umblicial hernia, diastasis recti), neonatal hypoglycemia and greatly increased risk of childhood cancer, particularly liver and kidney tumors.

What causes Beckwith-Wiedemann Syndrome and who is affected?

The causes of BWS are not always fully understood, although genetic testing has shown many patients to have changes in the genes of chromosome 11. Beckwith-Wiedemann Syndrome has an estimated occurrence of one in 14,000. BWS has been documented in many different ethnic groups from around the world and occurs equally in males and females. Some cases of BWS are inherited, but most are sporadic.

For More Information or to know more about HOWBIGBWS visit http://www.howbigbws.com
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https://www.instagram.com/howbigbws/

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This Film was produced by Jabin Postal Films.

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About this Video:
This BWS Awareness video was put together to help bring awareness to Beckwith Wiedemann Syndrome which is commonly know as BWS. We worked together with the community from HOWBIGBWS and wanted to let people know more about this syndrome and the effects that it has on individuals. This Beckwith-Wiedemann Syndrome BWS Awareness Campaign will help you see what families will have to go through when having a child who is born with BWS.