Tongue Reduction Surgery Post-Op with Beckwith Wiedemann Syndrome

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06/24/23

It took 4 years for this Tongue-Reduction post. Not because it wasn’t important, but due to the emotions that are brought up when watching the videos or seeing the pictures from his surgery. It was a time in our life that I wanted to forget because it was painful to watch him go through it. But, I also think it is important to remember our journey. We have only come this far as a family through God’s grace and loving hands guiding us and strengthening us.

“Fear not for I am with you, be not dismayed, for I am your God.
I will strengthen you, I will help you;
I will uphold you with my righteous right hand” -Isaiah 41:10

And to my BWS family, I hope this video will bring comfort to those struggling with the decision of a Tongue Reduction (glossectomy) surgery. Some of the photos are graphic post-surgery, but I promise, the results are astonishing. We are so thankful for his surgery which allowed Jake to eat, breathe, and talk like any other kid. I truly believe BWS stands for: Babies With Strength!

Please feel free to ask any questions you may have regarding the surgery. You can also visit our website to read more about our journey with Beckwith-Wiedeman Syndrome: www.mybwsbaby.com

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