Tuber Sclerosis Complex: Life after Diagnosis

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06/27/23

Ryan Long with mother Jody Long and neurologist Mustafa Sahin in the Clinical and Translational Study Unit at Boston Children's Hospital. Ryan is participating in a Tuberous Sclerosis Complex (TSC) research study pioneered by Sahin. It is hoped that the drug being tested in this study, RAD001, will improve cognitive outcomes in patients with TSC, a genetically-based developmental disorder.

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