Tuber Sclerosis Complex: Life after Diagnosis

Ryan Long with mother Jody Long and neurologist Mustafa Sahin in the Clinical and Translational Study Unit at Boston Children's Hospital. Ryan is participating in a Tuberous Sclerosis Complex (TSC) research study pioneered by Sahin. It is hoped that the drug being tested in this study, RAD001, will improve cognitive outcomes in patients with TSC, a genetically-based developmental disorder.