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Sean’s Story: Amyloidosis
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• 06/06/25
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In this video, Sean Riley from New Hampshire shares his health journey with amyloidosis, a rare genetic condition caused by mutations in certain genes that lead to the abnormal production of amyloid proteins. These proteins misfold and deposit in tissues and organs, disrupting their normal function. Sean is a speaker and advocate for the Amyloidosis Speaker Bureau and explains the disease burden of ATTR‐CM from a patient perspective and the value of treatments for amyloidosis to improve the quality of life for patients with this hereditary condition.
This patient perspective video was developed for the AMCP Nexus 2024 grant-funded session, D3 Rare Disease Spotlight: Transthyretin Amyloidosis Cardiomyopathy (ATTR‐CM) Disease Burden, Unmet Needs, and Treatment Advances.
View Session: https://amcplearn.org/content/....rare-disease-spotlig
View other patient stories and disease state resources to inform health care decision-making at: https://www.amcp.org/patient-j....ourneys-shaping-heal
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