The Institute for Future Health (IFH) second annual Updates in Amyloidosis Continuing Medical Education (CME) Conference at the Gila River Casino at Wild Horse Pass on Sat. Feb. 3, 2024. The conference brought together leading Valley experts in cardiology and amyloidosis, a primary rapidly emerging topic that interconnects several medical specialists from cardiovascular and neurologic conditions to renal and pulmonary complications, creating a multi-organ involvement if left undiagnosed/or not properly treated. The event was supported in part by AstraZeneca and included a sponsored coffee break by BridgeBio and a product theater lunch hosted by Alnylam.

Links:
The Institute for Future Health (IFH) - https://theifh.org/
Join us for upcoming Amyloidosis events - https://theifh.org/updates-in-cardiac-amyloidosis/

Transthyretin Amyloidosis (ATTR) Treatments Webinar, January 18, 2025 presented by Amyloidosis Support Groups.

Moderator
Muriel Finkel, President, Amyloidosis Support Groups

Speakers
Chafic Karam, MD, Chief, Neuromuscular Division, Professor of Neurology, Penn Amyloidosis Center, University of Pennsylvania, Philadelphia, PA
Farooq Sheikh, MD, Medical Director, Advanced Heart Failure Program, MedStar Heart and Vascular Institute, Associate Professor of Medicine, Georgetown University School of Medicine, Washington, DC
Brett Sperry, MD, Director, Cardiac Amyloidosis Program, Saint Luke's Mid America Heart Institute, Assistant Professor of Medicine, University of Missouri, Kansas City, MO
Frederick L. Ruberg, MD, Chief for Cardiovascular Medicine, Boston University Medical Center, Professor of Medicine, Boston University School of Medicine, Boston, MA
Paula Schmitt, Executive Director, Amyloidosis Support Groups

Chapters
0:00 Introduction
4:51 Dr. Farooq Sheikh: Disease Modifying Therapies for Transthyretin Cardiac Amyloidosis
21:17 Dr. Brett Sperry: Curing ATTR-CM: Are We Getting Closer?
37:59 Dr. Chafic Karam: Polyneuropathy Treatments for Hereditary ATTR
54:15 Paula Schmitt: Financial Assistance
1:04:44 Question and Answer Session, Drs. Karam, Sheikh, Sperry, Ruberg

LINKS REFERENCED IN WEBINAR
Therapies for ATTR in 2025: https://drive.google.com/file/....d/115w2QgJLEMGJtCv-b
Financial Assistance Chart for 2025: https://drive.google.com/file/....d/1-1bng5jSCr9Fn0D0u

PHARMA Websites for Assistance and Information
www.AlnylamAssist.com
www.vyndalink.com - 1-888-222-8475 8 am -8 pm
Attruby - https://forgingbridges.com/patient/financial/
Vyndamax In Canada https://www.pfizer.ca/en/our-p....roducts/assistance-p
https://www.myaccess360.com/pa....tient/wainua-eplonte

ATTR Financial Assistance
https://fundfinder.panfoundation.org/
www.panfoundation.org
www.tafcares.org
www.copays.org
https://rarediseases.org/patie....nt-assistance-progra
www.healthwellfoundation.org - their cardiomyopathy fund covers Attruby

Free Genetic Testing
Alnylam Act and Prevention Genetics: https://www.preventiongenetics.....com/sponsoredTestin
Astra Zeneca/Ionis and Prevention Genetics: https://www.preventiongenetics.....com/sponsoredTestin

This webinar video has been edited for content and time.

Pedro Vianna, MD, is an amyloidosis physician in the Amyloidosis Program at Dana-Farber and Brigham and Women's Hospital. In this video, he discusses his unique approach to treating patients and how Dana-Farber's multidiscliplinary team helps patients receive the best care possible.

Learn more about the Amyloidosis Program at Dana-Farber and Brigham and Women's Hospital: https://www.dana-farber.org/ca....ncer-care/treatment/

Send us a text (https://www.buzzsprout.com/twi....lio/text_messages/23


This episode of All Things Amyloid is an adaptation of Amyloidosis Support Groups’ patient education video narrated by Michael York. You’ll hear a brief yet comprehensive overview of amyloidosis designed specifically for patients. It discusses what amyloidosis is, the wide range of symptoms, and which organs are typically involved. It focuses on the most common types, AL (light chain) and TTR (transthyretin), and summarizes the kinds of treatments that are currently available. The video can be found on AmyloidAware.com (http://amyloidaware.com/) .

Send us a text (https://www.buzzsprout.com/twi....lio/text_messages/23


What if you are a doctor and diagnosed with amyloidosis, and now you’re a patient? In this episode we’ll be talking with Dr. Charles Schulman, a general cardiologist. He was on the staff at Beth Israel Deaconess Medical Center for over 53 years, until he retired in early 2024. Back in 2020 he was diagnosed with Wild-Type Transthyretin Amyloidosis with cardiomyopathy – or ATTRwt-CM. It’s an interesting situation to be in, with lots of questions to understand how being a doctor impacts your experience as a patient and vice versa. For an overview of amyloidosis, please see episode 2 (for clinicians) or episode 3 (for patients).

Cardiac amyloidosis is a condition affecting over 300,000 people globally with rogue proteins invading the heart. This condition has long been a diagnostic puzzle but hope is on the horizon!

In case you missed it, the FDA has approved BridgeBio’s (BBIO) Acoramidis, also known as Attruby, a transthyretin stabilizer revolutionizing care for ATTR-CM. And that’s not all!

Vutrisiran, a promising RNA interference therapy, is making waves by reducing TTR production and cardiac events for ATTR amyloidosis patients. These breakthroughs are saving lives—and driving innovation.

If you are an accredited investor who is passionate about saving lives while growing your investment portfolio, Evergrowth Biohealthcare Capital can be a good fit for you.

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Disclaimer: As a medical doctor/market expert, I’m not a registered investment advisor. Despite that I strive to provide the most accurate information, I neither guarantee the accuracy nor timeliness. Past performance does NOT guarantee future results. I reserve the right to make any investment decision for myself and my affiliates pertaining to any security without notification except where it is required by law. I am also NOT responsible for the actions of my affiliates. The thesis that I presented may change anytime due to the changing nature of information itself. Investment in stocks and options can result in a loss of capital. The information presented should NOT be construed as a recommendation to buy or sell any form of security. My articles and videos are best utilized as educational and informational materials to assist investors in your own due diligence process. That said, you are expected to perform your own due diligence and take responsibility for your actions. You should also consult with your own financial advisor for specific guidance, as financial circumstances are individualized. That aside, what I shared with you is not professional medical advice. I simply share with you what I share with my own family to help get more out of your life.

#Amyloidosis #hematology #amyloidosissymptoms #amyloidosistreatment #amyloidosiscauses #kidney #heart #heartattack #nervedamage #protein #healthvideointelugu #healthtipsintelugu #kaizen #hyderabad

Amyloidosis: కారణాలు, లక్షణాలు, మరియు చికిత్స | What is Amyloidosis | What are the causes of amyloidosis in telugu | What are the symptoms of amyloidosis in telugu | how to diagnose the amyloidosis | What are treatment for amyloidosis in telugu


అమిలోయిడోసిస్ అంటే ఏమిటి ? అమిలోయిడోసిస్ అనేది ఒక రకమైన వ్యాధి. మన శరీరంలోని కొన్ని భాగాల్లో అసాధారణమైన ప్రోటీన్లు పేరుకుపోతాయి వాటిని అమిలాయిడ్ అని అంటారు. ఇలా పేరుకుపోవడం వల్ల ఆ భాగాలు సరిగ్గా పనిచేయవు. అమిలోయిడోసిస్ లక్షణాలు ఎలా ఉంటాయి? అలసట, శరీరం ఉబ్బడం, బరువు తగ్గడం, ఊపిరి ఆడకపోవడం, దడ, తల తిరుగుతూ ఉండటం.

అమిలోయిడోసిస్ ఎన్ని రకాలు ఉన్నాయి ? ఈ వ్యాధికి చాలా రకాలు ఉన్నాయి. ఏ రకమైన అమిలాయిడ్ ప్రోటీన్ పేరుకుపోయిందో దాని మీద ఆధారపడి లక్షణాలు మారుతూ ఉంటాయి. అమిలోయిడోసిస్ ఏ భాగాలను ప్రభావితం చేస్తుంది? సాధారణంగా మూత్రపిండాలు, గుండె మరియు నరాలు ఈ వ్యాధి వల్ల ఎక్కువగా ప్రభావితమవుతాయి.

అమిలోయిడోసిస్ ఉంది అని ఎలా తెలుస్తుంది? ఈ వ్యాధిని నిర్ధారించడానికి బయాప్సీ ద్వారా పరీక్షించాలి. అమిలోయిడోసిస్ చికిత్స ఎలా చేస్తారు?
చికిత్స ఎలా చేయాలో వ్యాధి ఎంత తీవ్రంగా ఉందో, ఏ భాగాలను ప్రభావితం చేసిందో దాని మీద ఆధారపడి ఉంటుంది. కొన్ని సందర్భాల్లో కీమోథెరపీ, స్టెమ్ సెల్ మార్పిడి వంటి చికిత్సలు చేయవచ్చు.


This video is about Amyloidosis, a rare blood disorder. It is caused by the accumulation of abnormal proteins in the body. This can lead to a variety of symptoms, depending on which organs are affected. The most common symptoms include fatigue, weakness, shortness of breath, and swelling. Treatment for Amyloidosis depends on the type of protein involved and the severity of the disease. However, there are effective treatments available for some types of Amyloidosis.

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Timestamp:
0:00 – Intro
0:15 – What is Amyloidosis
0:57 – How amyloidosis effects on organs
1:10 – How amyloidosis effect on kidneys
1:37 – How amyloidosis effect on heart
2:22 – How amyloidosis effect on nerves
2:38 – How amyloidosis effect on bone marrow
2:56 – How amyloidosis effect on skin
3:19 – Amyloidosis symptoms
3:51 – How to diagnose amyloidosis
4:38 – Amyloidosis treatment
5:16 – End



Dr. Byreddy Poojitha
MBBS, MD, DM (Clinical Hematology and BMT),
Hematology hemato - oncology and bone marrow transplant,
Consultant - Hematology

Kaizen Hematology Oncology Network
Address: CARE Hospital, Old Mumbai Hwy, near Cyberabad Police Commissionerate, Jayabheri Pine Valley, HITEC City, Hyderabad, Telangana 500032
Appointments contact – 9154143858/9154143859
Website : https://kaizenoncology.com/

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