Multiple Myeloma


Valarie’s life flipped in an instant after she was diagnosed with multiple myeloma. At first, she became overwhelmed with fear but she slowly turned that fear into learning more about her disease. She explains how she processed her diagnosis, the treatment she underwent and the fears and challenges of going through a stem cell transplant.
But just as she was recovering from her multiple myeloma treatments and trying to get back to a “normal life,” she learned about a second cancer diagnosis.
Full story & transcript → https://www.thepatientstory.co....m/patient-stories/mu
The interview has only been edited for clarity.
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Website : https://www.thepatientstory.com/
Facebook: @ThePatientStory
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Twitter: @patient_story
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Contents of the Video:
00:00 - intro
01:25 - Stem cell transplant process
06:35 - Recovering from the stem cell transplant
13:54 - Maintenance therapy post stem cell transplant
16:09 - Testing for minimal residual disease (MRD)
24:42 - Dealing with the healthcare system as a black woman
29:45 - How culture influences health care
32:20 - Receiving a second cancer diagnosis
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#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #mmsm #multiplemyeloma #myeloma #advocate #stemcelltransplant #breastcancer #bcsm


Experience the latest insights and discussions on "Approaches to Myeloma Relapse" with renowned experts in the field, recorded live at the 2023 International Myeloma Foundation's Patient and Family Seminar in Boca Raton, Florida.
This panel discussion is led by the IMF Chairman of the Board and Chief Scientific Officer, Dr. Brian G.M. Durie, and includes other distinguished myeloma experts, such as Dr. Nikhil Munshi, Dr. Peter Voorhees, and Beth Faiman, PhD, MSN, APN-BC, AOCN®, BMTCN®, FAAN, FAPO. Don't miss this unique opportunity to learn from the best and stay on top of the latest advancements in the field of multiple myeloma. Tune in now!
Panelists include:
Brian G.M. Durie, MD
IMF Chief Scientific Officer and Chairman of the Board
Beth Faiman, PhD, MSN, APN-BC, AOCN®, BMTCN®, FAAN, FAPO
IMF Nurse Leadership Board Member
Cleveland Clinic, Taussig Cancer Institute — Cleveland, OH
Peter Voorhees, MD
Professor of Medicine, Chief of the Plasma Cell Disorders Division
Atrium Health, Levine Cancer Institute — Charlotte, NC
Nikhil Munshi, MD
Professor of Medicine, Harvard Medical School
Associate Professor, Medical Oncology, Dana-Farber Cancer Institute
Harvard Medical School and Dana-Farber Cancer Institute — Boston, MA
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Improving Lives | Finding the Cure
Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest organization focusing specifically on multiple myeloma. The IMF’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of lives of myeloma patients while working toward prevention and a cure through our four founding principles: Research, Education, Support, and Advocacy.
Subscribe to our channel: https://www.youtube.com/c/IMFMyeloma
Visit our website at: https://www.myeloma.org
Find us online:
Facebook: @myeloma | https://facebook.com/myeloma
Twitter: @IMFMyeloma | https://twitter.com/IMFmyeloma
Instagram: @imfmyeloma | https://www.instagram.com/imfmyeloma
LinkedIn: https://www.linkedin.com/compa....ny/international-mye
Support the IMF | Donate Now! https://secure.myeloma.org/page/40697/donate/1
Category
Nonprofits & Activism
License
Standard YouTube License
In most cases, captions are autogenerated by YouTube.


Official Website: https://www.shakirajgrant.com/
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This clip is an excerpt from a Hemepath Board Review video by special guest, Dr. Jeanette Ramos (full video here: https://kikoxp.com/posts/3726). If you missed Dr. Ramos's first guest lecture discussing the histology and immunostaining patterns of non-neoplastic lymph nodes, check it out here: https://kikoxp.com/posts/4068.
If you like Dr. Ramos's cases and teaching style, be sure to follow UAMS Hematopathology on social media, as she often contributes to their accounts:
- https://twitter.com/hemepathuams
- https://www.facebook.com/hemepathUAMS/
A complete organized library of all my videos, digital slides, pics, & sample pathology reports is available here: https://kikoxp.com/posts/5084 (dermpath) & https://kikoxp.com/posts/5083 (bone/soft tissue sarcoma pathology).
This video is geared towards medical students, pathology/internal medicine/family practice residents, hematology or hematopathology fellows, or practicing pathologists or hematologists. Of course, this video is for educational purposes only and is not formal medical advice or consultation. Neither Dr. Ramos nor Dr. Gardner have any special inside knowledge of the content of the path/heme/hemepath/USMLE board examinations. This video is subjectively labeled as a "board review" purely because we believe these topics are potentially testable entities, not because we have any knowledge about the frequency that they will show up on actual board exams.
Please subscribe to my channel to be notified of new pathology teaching videos.
Follow me on:
Snapchat: JMGardnerMD
Twitter: @JMGardnerMD
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Kiko: https://kikoxp.com/profile/jer....ad_gardner1/content?
Facebook: https://www.facebook.com/JMGardnerMD/


Welcome to the Quick Guide for Coping with Symptoms and Side Effects of Multiple Myeloma. This Quick Guide will focus on the symptoms and side effects of Multiple Myeloma. It also gives different resources for support.
Links:
Coping and Support for those with Multiple Myeloma: https://www.cancersupportcommu....nity.org/multiple-my
Resource Guide: https://www.cancersupportcommu....nity.org/sites/defau
0:00 Introduction
0:22 Anemia
1:07 Infections
2:13 Bone Problems
3:53 Kidney Problems
5:37 Fatigue and Peripheral Neuropathy
7:45 Other Common Side Effects
8:00 Support


In this conversation, Patient advocate Cindy Chmielewski, also known as the "Myeloma Teacher," speaks with Dr. Caitlin Costello a hematologist-oncologist at the University of California, San Diego and Dr. Sagar Lonial, the chief medical officer at the Winship Cancer Institute at Emory University.
They discuss cutting-edge treatments and therapies for both transplant-eligible and transplant-ineligible patients, combination therapies and the necessity of stem cell transplants.
Thank you to Janssen for its support of our patient education program!
Full story & transcript → https://www.thepatientstory.co....m/medical-experts/ne
Full story & transcript → https://www.thepatientstory.co....m/medical-experts/ne
Join Our Community:
Website : https://www.thepatientstory.com/
Facebook: @ThePatientStory
Instagram: @ThePatientStory
Twitter: @patient_story
Contents of this Video:
00:00 - Intro
01:26 - Transplant eligible and transplant ineligible patients
04:13 - treatment for transplant ineligible patients
06:56 - Using 3 vs 4 drugs for treating transplant eligible patients
09:37 - Do you think the 4 drug combination will be the new standard of care?
10:51 - Necessity of stem cell transplant (DETERMINATION trial)
16:52 - Seeing a myeloma specialist
#multiplemyeloma #multiplemyelomaawareness #MMSM #thepatientstory #cancersurvivor #cancerstories #ASH22 #myelomatreatment #bloodcancer #cancer