Rare Disorder Means I Get Cancer Scans Every 3 Months! | Lainie's Story (Li-Fraumeni Syndrome)
By the time Lainie was 26, she had been diagnosed with 4 cancers and then a 5th only a few years later. In part two of this conversation, she opens up about how she lives with Li-Fraumeni syndrome, a rare disorder that makes her more susceptible to growing cancer, her experience of hair loss right before her wedding and how her support system has been crucial to her cancer journey.
Watch Lainie's Segment 1 Video:
I have been Diagnosed with 5 Different Cancers but I am Thriving: https://youtu.be/jaDYvorrkPE
Full story & transcript → https://www.thepatientstory.co....m/patient-stories/br
The interview has only been edited for clarity.
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Contents of the Video:
00:00 - Intro
01:54 - Describe your treatment
03:30 - Getting a 5th cancer diagnosis
04:43 - Describe your side effects
05:31 - Experiencing hair loss
07:59 - Getting scans every 3 months
10:29 - Importance of having a support system
12:57 - Trusting your instincts
15:49 - Words of advice
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