PARENT OF YOUNG ADULT WITH GORLIN SYNDROME TO SHARE EXPERENCES & INSIGHTS DURING APRIL 12TH WEBI
Tom Sprague, a parent of 23-year-old daughter Delaney Sprague, a college student affected with Gorlin syndrome, will share his insights and experiences of how he and his wife support Delaney as she learns to make more decisions about her medical care. Join Tom on Wednesday, April 12th, at 8:30 p.m. Eastern time, for the the final webinar in our four-part series for kids of all ages affected by Gorlin Syndrome. This webinar will focus on children ages 16 and older as they transition into adulthood. He'll be joined by his daughter Delaney, along with Dr. Elena Hawryluk, a pediatric dermatologist and associate professor of dermatology at Harvard Medical School, and Julie Breneiser, the executive director of the Gorlin Syndrome Alliance. Register now at www.gorlinsyndrome.org/webinars
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