One Year with Beckwith Wiedemann syndrome BWS

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06/24/23

Discovering life beyond the diagnosis.

Our son Jacob was diagnosed with a rare chromosome disorder, Beckwith-Wiedemann Syndrome. We felt scared and alone when we started our journey. I remember desperately searching for stories of other children with BWS to see their outcome because we just didn't know what to expect. Here we are, one year later, and I can't tell you how amazed I am at the difference a year makes. The beginning months are tough, but you will make it through with love, hope, and faith.

We welcome you to visit our website with information on BWS, blogs, and more:
www.mybwsbaby.com