Off Pegasys Pegylated Interferon Alfa Treatment MPN Myeloproliferative Neoplasm Polycythemia Vera

#interferon #peginterferon #Pegylatedinterferon #nineandvine

Off Pegasys Pegylated Interferon Alfa Treatment for MPN Myeloproliferative Neoplasms Polycythemia Vera
Peginterferon alfa-2a
Pegylated Interferon Alfa

Yep, Off again. Could this be a very dysfunctional relationship?
Yes, and I still want it.
I am still holding on to hope that we can make it work.
Do I like giving myself injections? NOPE
Do I like how I feel on it? NOPE
Am I almost conditioned to pain? SOMETIMES
Am I feeling desperate? YEP
Will I keep trying? YEP
My skin is sickly dry, I drink tons of liquids and it doesn't seem to help. My liver hurts, I get nauseous randomly, it's hard to eat. My belly bulges out on and off, huge swelling, getting the rash on and off sometimes a burn sometimes just an itch.
I pray it will all be worth it!
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WHAT TO WATCH NEXT:
good articles in this on-line magazine:
MPNForum MPN Research Advocate Magazine Essential Thrombocythemia Myelofibrosis PV Help!
https://youtu.be/7HcKwZm1vcI
How I've Raised Awareness for Blood Cancer Polycythemia Vera MPN and Hope to Continue to Give More
https://youtu.be/bb-jopODLEI
Rare Disease Day 2018 Polycythemia Vera MPN's PV MF ET Blood Cancer
https://youtu.be/CqGkHdFbnK0
MPN Awareness Day & What Blood Cancer Month Means to me Polycythemia Vera
https://youtu.be/Gbhm9S96_BU
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• Category

  Chronic Myeloproliferative Neoplasms