Neurofibromatosis Leaves Mum’s Body Covered In Lumps

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07/02/23

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MUM-OF-FOUR Rachael Reynolds spends each morning getting her children ready for the day ahead, but her severe skin condition leaves her brimming with anxiety each time she leaves the house to do the school run. Rachael, 41, from Huddersfield, has neurofibromatosis type 1 (NF1), a genetic disorder which leaves her with large bubble-like lesions all over her face, neck, arms, back, tummy and legs. The stay-at-home mum, who inherited the condition from her father, is regularly subjected to cruel taunts on the street as a result of her condition. However, Rachael is determined not to let neurofibromatosis beat her, and has set up a Facebook group, Neurofibromatosis Our World, to enable patients and their families to connect and talk about the condition, and to challenge the stigma faced by sufferers.

May is World Neurofibromatosis Awareness Month! For more information and support on neurofibromatosis visit the Neuro Foundation’s website: http://www.nfauk.org

People with neurofibromatosis or supporting someone with the condition can join Rachael’s group, Neurofibromatosis Our World, by visiting: http://www.facebook.com/groups/278519335835327/

Videographer / director: Dave Hare
Producer: Tom Midlane, Nick Johnson
Editor: Marcus Cooper, Jack Stevens

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