NCCN Patient Webinar: Chronic Lymphocytic Leukemia (CLL)

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07/08/23

Experts provide information and answer questions about chronic lymphocytic leukemia to help patients and caregivers compare, discuss, and select treatment options with their doctor. See list below for topics discussed.

Topics Discussed:
00:00 - Welcome and NCCN Overview
02:00 - Presenter Introductions
02:34 - Diagnosis and Prognosis
10:36 - Watch and Wait
15:35 - COVID-19 and Vaccines
17:15 - Be Your Own Advocate
29:15 - Current Treatments
40:31 - Side Effects
51:27 - New Treatments
1:00:16 - Clinical Trials
1:41:07 - Closing Remarks

Question and Answer Session:
1:06:17 - Q & A: What are the similarities between Acute Lymphocytic Leukemia and CLL?
1:07:03 - Q & A: Why is CLL a Lymphoma and a Leukemia?
1:07:56 - Q & A: Do you think the increase risk of secondary malignancies is in any way associated with the TP53 mutation?
1:10:28 - Q & A: If you are being treated with R bendamustine, should you receive a prophylaxis like PJP?
1:11:12 - Q & A: Are there coaches for CLL?
1:12:50 - Q & A: Are there any specific mutations disclosed by NGF which would lead you to recommend treatment with a BTK inhibitor vs. venetoclax?
1:15:04 - Q & A: How does age effect doing watch and wait or treatment options?
1:16:15 - Q & A: Advice about stem cell transplants?
1:17:41 - Q & A: Advice on what activities are safe for those with the COVID-19 vaccine?
1:20:03 - Q & A: Ref. diagnosis: When you mentioned 5,000 as count, how do you calculate that from bloodwork where the white blood count is 14 or 16?
1:21:21 - Q & A: Is CLL hereditary?
1:22:55 - Q & A: Is there a connection between CLL and very swollen tonsils?
1:23:28 - Q & A: When would a CT Scan of the abdomen, chest and hip be warranted during CLL progression?
1:24:59 - Q & A: Can antibodies be administered to CLL patients as preventive or is it just for active COVID patients?
1:26:16 - Q & A: If a person is in remission, would they be eligible for a clinical trial?
1:27:11 - Q & A: When should a new patient with CLL that has a 13q defect seek out a CLL specialist? **
1:28:46 - Q & A: If you have a side effect on one type of treatment, and switch to a different treatment with a similar medication, would you experience the same side effect?
1:30:54 - Q & A: What cancers are considered secondary to CLL?
1:32:19 - Q & A: If you are doing well on long term treatment, can you stop?
1:33:30 - Q & A: If you are on a time limited but haven't reached remission, can you stay on your treatment longer?
1:35:46 - Q & A: Can you get COVID-19 again if you've had COVID and are vaccinated?
1:39:11 - Q & A: Do you recommend getting a second round of the COVID vaccine?

Please note that this is a not an accredited activity.

The Know What Your Doctors Know: Chronic Lymphocytic Leukemia webinars occurred in April 2021. This informational program was created in conjunction with the recently updated NCCN Guidelines for Patients® for Chronic Lymphocytic Leukemia.

The NCCN Guidelines for Patients sheets are available to read and download for free online and via the NCCN Patient Guides for Cancer mobile app. Printed editions can be ordered from Amazon.com for a small fee.

NCCN Guidelines for Patients DO NOT replace the expertise and clinical judgment of the clinician.

Supporters:
This webinar is supported through the NCCN Foundation and by a contribution from our corporate supporter: AstraZeneca. The webinar is further supported by an independent educational grant from AbbVie.

Our corporate supporters do not participate in the development of the NCCN Guidelines for Patients and Know What Your Doctors Know webinars and are not responsible for the content and recommendations contained therein.

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About NCCN Foundation®:
NCCN FOUNDATION® is a 501(c)3 organization founded by the National Comprehensive Cancer Network® (NCCN®)—a not-for-profit alliance of leading cancer centers devoted to patient care, research, and education—to empower people living with cancer and advance oncology innovation. For more information or to make a donation, visit www.nccn.org/patients/foundation

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About NCCN:
The National Comprehensive Cancer Network® (NCCN®) is a not-for-profit alliance of leading cancer centers devoted to patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, equitable, and accessible cancer care so all patients can live better lives. Visit https://www.nccn.org/ for more information.

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