Mastocytosis and Mast Cell Activation Syndrome Awareness
A disease or disorder is defined as rare in Europe when it affects fewer than 1 in 2000.
A disease or disorder is defined as rare in the USA when it affects fewer than 200,000 Americans at any given time.
In the EU, as many as 30 million people alone may be affected by one of the 6000 to 8000 rare diseases existing. Two rare diseases are Mastocytosis and Mast Cell Activation Syndrome. These numbers do not include countless patients suffering without a diagnosis.
Mastocytosis and Mast Cell Activation Syndrome affect all systems, organs and tissues of the body. In particular, skin, liver, spleen, lymph nodes, bones and bone marrow, lungs, gastrointestinal system, eyes and blood are the most documented as adversely impacted by these diseases. Research exists but much more needs to be done to further identify and understand the less studied effects of mast cell disorders on the heart, brain and female reproductive system.
Despite Mastocytosis & related mast cell disorders being classified as rare, escalation in the prevalence of these patients worldwide has resulted in a flurry of medical research ongoing in numerous countries. This indicates that these disorders may not be rare, but rather have been commonly misidentified and unfortunately for patients worldwide, commonly undiagnosed. Since approximately 2005, every year there are new theories, classifications, and adjustments to the Mastocytosis definitions due to escalation of patients presenting with these disorders worldwide.
For more information please go to:
http://tmsforacure.org
http://rarediseaseday.org
https://www.facebook.com/MastCellAware?fref=ts
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