Make NF Visible: Brianna and William
May is NF Awareness Month,
and the Children’s Tumor
Foundation is amplifying our
efforts to Make NF Visible.
Often patients with visible
signs of NF struggle to be seen
as more than just their NF, while
patients whose NF is invisible
struggle to make others
understand. Make NF Visible is
about seeing NF, and seeing the
person living with it.
Learn more about all the ways
you can Make NF Visible this
May at https://www.ctf.org/get-involved/make-nf-visible
NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body. NF includes neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2), formerly known as neurofibromatosis type 2.
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Our thanks to this daughter and father, Brianna and William Gholston, for sharing their stories in this video.
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