Learn How You Can Be an Advocate for the Gorlin Syndrome Community!

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07/06/23

The Gorlin Syndrome Alliance hosted a community webinar focused on the importance of PFDD (Patient Focused Drug Development) participation. If you missed the live stream, you can watch it here! Learn how YOU can be an advocate for the Gorlin syndrome community. Julie Breneiser, executive director of the Gorlin Syndrome Alliance, joined James Valentine, associate at Hyman, Phelps, & McNamara, and Larry Bauer, senior regulatory drug expert at Hyman Phelps & McNamara, to discuss the upcoming patient focused drug development meeting with the FDA and how you can get involved!

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