Cocoapuff Mastocytosis 2009.mpg
I do not own any of the music in this slideshow..I am not making and proceeds of of this slide show or any of it's contents..I just trying to raise awareness about this Orphan Disease called Mastocytosis ...If you can find it in your heart to just forward this video to everyone you know..it would really help people see that this can happen to anyone..this is not something that runs in families..you pretty much hit adulthood ..starts with signs that could be asthma..then turns into being tired..out of no where joint pain ..you where told was bursitis? then reaction to antibiotic..end you up in ER ..then is doesn't stop or go away..constant reactions and pain ..that will keep progressing..I spent 8 weeks this summer having to be cared for because I couldn't take care of myself ..breathe or sleep..eating was a battle and crying is everyday..I am on more medications than I have ever seen in my life and this will be the rest of what life I have left...No one knows ...NO CURE..WHY is this happening to us? What is the cause ? Will it be cured before it can Kill me? No one knows
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