CLL Patient Stories: My Chronic Lymphocytic Leukemia First Symptoms & Diagnosis | Tamsin W. (1 o
Tamsin shares her in-depth story of getting diagnosed with CLL or chronic lymphocytic leukemia, starting with a description of her first symptoms (out of breath, dizzy, nausea, fatigue, palpitations). Tamsin also talks about the tests and scans she had to undergo to get the CLL diagnosis, as well as and how she navigated the healthcare system in the UK, advocating for herself along the way,.
Thank you for sharing your story, Tamsin!
Full story & transcript โ https://www.thepatientstory.co....m/cancers/leukemia/c
Videos:
1) CLL First Symptoms & Diagnosis: This Video
2) Treatment Decisions & Getting Through the Depression: Coming Soon
3) CLL Treatment & Side effects: Coming Soon
The interview has only been edited for clarity.
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Contents of the Video:
00:00 - Intro
00:49 - Tell us a little about yourself
02:03 - What were the first symptoms?
03:17 - The timeline of the first symptoms and doctor appointments
04:05 - How did the heart palpitations feel?
05:02 - What were your thoughts throughout the tests?
06: 06: Explanation for the colonoscopy
07:37 - Dealing with uncertainty before diagnosis
08:34 - Appointment with the cardiologist
09:36 - The inexplicable pain from the symptoms
10:18 - Describe the shoulder and groin pain
11:16 - How long did the night sweats last?
11:57 - Explaining the weight loss
13:13 - The blood test that changed everything
16:20 - What was on your mind throughout all of this?
17:22 - Next steps after getting admitted to hospital
18:36 - The day of diagnosis
21:36 - Getting the diagnosis for blood cancer
23:14 - What helped you get through this period of not knowing?
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