Because participating in a clinical trial is an important personal decision, this video produced by the Tuberous Sclerosis Alliance offers basic information to help people with tuberous sclerosis complex (TSC) or other diseases make an informed decision. It also highlights why clinical trials are so crucial in gaining a better understanding of how to treat TSC. For more information, visit http://www.tsalliance.org/pages.aspx?content=332.

Cathy Evanochko is co-founder of Tuberous Sclerosis Canada and the mother of Kimberly who was diagnosed with tuberous sclerosis complex (TSC) in 1986 and with lymphangioleiomyomatosis (LAM) in 2007.

TSC impacts multiple organs of the body. Fortunately, the drug Afinitor (everolimus) works on many of those organs to improve the overall health of TSC patients. That is the good news. The bad news is that getting access to the drug in Canada requires both provincial and federal authorities to approve the drug for each indication. As such, a patient in one province may not have access to the drug simply due to their location and the main organ that is affected.

For more information, vist www.tscanada.ca/

#USMLE #short

I’m excited to announce my two new webinars for the month of May:

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May 28th, May 29th (2 days), 2022 10 AM to 1 PM EST
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I am a pediatric critical care fellow passionate about inspiring the next generation of medical students. My goal is to deliver an active-recall based, engaging high-yield review so you rock your USMLE! I would love to connect with each and every one of you so definitely reach out!

Steven Roberds, PhD, chief scientific officer for TS Alliance, talks about some treatment options that need to be developed, or are being developed to treat people with tuberous sclerosis complex.

For more information, visit www.TSAlliance.org

Patient History -Pari Shukla Father from Ghaziabad shares his experience after Tuberous Sclerosis With Seizure Disorder treatment by Stem Cell Care India| stem cell therapy for Tuberous Sclerosis With Seizure Disorder treatment| Treatment for Tuberous Sclerosis With Seizure Disorder treatment

At Stem Cell Care India, #Developmental_Delay_Treatment_with_Seizure includes a unique combination of therapies including #stem_cell_therapy, #physiotherapy and occupational therapy, speech and swallowing therapy. The duration of treatment is based on the patient’s severity and state and it ranges from 3-4 days.

Global Development Delay is a disorder found in children where they are slow in reaching the required development milestones. They include learning, talking and motor skills, etc. The most common causes of GDD are genetic abnormalities or abnormalities of the brain or spinal cord. As stem cells have the potential to repair the damaged tissues of the brain, cell therapy is the best available treatment to repair the damaged cells and restore brain plasticity. For a #GDD treatment with stem cells,

To know more about #Developmenta_delay and its treatment at Stem Cell Care India, please visit

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Mum, Philippa Ward, found out that she had TSC on diagnosis of her son Thomas.

Hear her moving account of living with TSC and hope for the future
If you're inspired by Philippa's story, you can sponsor here here: https://www.justgiving.com/Philippa-Ward/

Steven Roberds, PhD, chief scientific officer for TS Alliance, talks about the latest clinical trial the advocacy group is focused on to determine which children with tuberous sclerosis complex will develop seizures and whether early intervention can attenuate seizure activity as the child grows.

For more information, visit www.TSAlliance.org