Learn about Anna Liberty's rare disease in this short, interesting video.

Her website is http://www.AnnaLiberty.com

Anna Liberty is an adorable little girl who cannot go out into the sunshine. She was born with Xeroderma Pigmentosum (or XP), a genetic disease that causes her to be extremely sensitive to the damaging effects of ultraviolet radiation. Here DNA can't repair itself. About 1 person for every million in the US have XP. Basically, Anna can't be exposed to direct sunlight. Ever.

Daily living is a bit different for Anna. Each day, Anna's skin is covered with sunblock and lotions. She must remain indoors to be completely safe. Before going outdoors, Anna must wear, long pants, long sleeved shirts, gloves, sunglasses, and a custom made hat with a specialty UV-blocking plastic face shield.You'll understand better after reading these answers to the common questions.

Because Anna was diagnosed early, if she continues to not show neurological symptoms, and takes all the precautionary measures to avoid exposure to UV light, she will defy the odds and live a long, happy life.

Sunburn XP Xeroderma Pigmentosum Vampire Rare Disease Genetic Inherited Sunblock UV Melt Sunlight Sun AnnaLiberty Anna Liberty

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O tema desse vídeo foi sugerido por vocês que estão inscritos no nosso canal pedindo para esclarecer o que é Xeroderma Pigmentoso, se tem alguma coisa a ver com Xerodermia.

Muitos nunca escutaram esses nomes. Será que isso quer dizer que são doenças raras?

Já vou adiantar que Xeroderma Pigmentoso e Xerodermia são doenças diferentes, então assista o vídeo até o final para entender quais são as diferenças, as causas e possibilidades de tratamentos.

Link desse vídeo: https://youtu.be/cFno4bPyfIQ

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Symptoms, risk factors and treatments of Xeroderma pigmentosum (Medical Condition)

Xeroderma pigmentosum, or XP, is an autosomal recessive genetic disorder of DNA repair in which the ability to repair damage caused by ultraviolet light is deficient

This video contains general medical information If in doubt, always seek professional medical advice.
The medical information is not advice and should not be treated as such. The medical information is provided without any representations or warranties, express or implied. We do not warrant or represent that the medical information on this websiteis true, accurate, complete, current or non-misleading

Music: 'Undaunted' Kevin Macleod CC-BY-3.0
Source/Images: "Xeroderma pigmentosum" CC-BY-2.5 https://www.freebase.com/m/04hffy

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