PHEOCHROMOCYTOMA is a catecholamine secreting tumor of the adrenal gland originating from the chromaffin cells), or extra-adrenal chromaffin tissue that failed to involute after birth that secretes high amounts of catecholamines, mostly norepinephrine, plus epinephrine to a lesser extent.

Extra-adrenal paragangliomas (often described as extra-adrenal pheochromocytomas) are closely related, though less common,

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Lisa Kozempel Erdely tells the story of her mother's struggle before being diagnosed with pheochromocytoma.

Visit www.pheoparatroopers.org for more information on pheos and paras, and how you can help fight this cancer.

You can also support rare disease by donating to Lori Kozempel's Memorial Fund:

https://salsa3.salsalabs.com/o..../…/donate_pa…/resear

Please select “Pheochromocytoma” on the research fund drop down select option. Then Click “Dedicate my donation to Lori Kozempel.” To donate by mail, please send a check to the NORD Connecticut office:

National Organization for Rare Disorders
55 Kenosia Avenue
Danbury, CT 06810

Or to donate by phone, please call to Mary Talbot who is an Accountant at NORD:

(617) 934-6387

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No two cancers are the same, nor are they treated the same, and neither should nutrition be the same for everyone. Nutrition includes foods like pulses, vegetables, fruits, nuts, oils, herbs and spices. Also nutrition includes supplements which are high concentrations of foods or high concentrations of individual ingredients found in foods. For cancers like Pheochromocytoma And Paraganglioma when undergoing chemotherapy or when you determine you have a genetic risk for developing Pheochromocytoma And Paraganglioma because of EPAS1 and AWAT1 gene mutations, a very important question is “What foods should I avoid and what foods are recommended specifically for me?”. The other related question is “What nutritional supplements should I avoid?”.

There is no one answer to this question for cancers such as Pheochromocytoma And Paraganglioma which can be found through internet searches. The answer to the question is “It Depends” because the nutrition plan needs to be personalized for you. Nutrition should depend on the cancer indication, genetic information, adult or pediatric, staging, primary or secondary, advanced, metastatic, relapsed or refractory, ongoing treatments if any, nutritional supplements being taken, age and factors like gender, weight, height, lifestyle, allergies and food preferences.

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When Jagdish, a person with a history of hypertension, started to feel chronic back pain, he was told that muscle relaxants will help his situation. After a lot of struggle and no results, he visited Manipal Hospitals, Old Airport Road where a team of multidisciplinary doctors diagnosed him with a rare tumour called Paraganglioma. After a successful surgery, he is now on the road to recovery!

Watch more here.

To know more, visit our website: http://bit.ly/38DC3GJ

#ManipalHospitalsOldAirportRoad #YourManipal #LifesOn #Tumour #Surgery #SpineCare #CancerCare #Health #Medicine #Oncology


Best Hospital in India: Manipal Hospitals is one of the top multi-specialty hospital in India located at all major cities like Bangalore, Vijayawada, Visakhapatnam, Goa, Salem, Jaipur, Mangalore. It provides world-class 24/7 Emergency services. Our top surgeons are experts in offering the best treatment for Heart, Brain, Cancer, Eye, Kidney, Joint & all major surgeries at affordable costs. Health Check up packages are also available.

To know more visit our website: https://www.manipalhospitals.com/

A lot of you have asked me a lot of questions about my tumor that I was diagnosed with, and had removed in 2011. This is the first in a 3 part series talking aaalllll about my tumor. Sorry it's so incredibly long. I wanted to be thorough.
When I got my diagnosis I was unable to find a survivor of this type of tumor, and I had no one to talk to about it, or ask questions, and I really could have used a happy ending story from a survivor as I approached an incredibly dangerous surgery. I hope this series can help even one other person who is going through this struggle, or inspire those of you who need motivation to keep going. Keep going. Keep asking questions. Keep looking for answers. You're not alone. ♥

Intro music by Alexander Osborn: https://soundcloud.com/alexand....er-osborn/indie-rock
www.alexanderosborn.tv

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Hi, I'm Kat, and I make lots of DIY videos, about everything from DIY jewelry, home decor, gifts, and crafts, to Gluten Free recipes, No-poo hair care, DIY hair extensions, how to make sugaring wax and arabic wax for natural hair removal, and how to make a bracelet out of a toothbrush. Here you can watch videos about friendship bracelets, whitening your teeth with activated charcoal, or even skip on over to my second channel for Story Time videos and vlogs!

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