Medulloblastoma - Childhood

Imani: Infant St. Jude Patient | St. Jude Possibilities
Imani: Infant St. Jude Patient | St. Jude Possibilities administrator 1 Views • 2 years ago

At just five weeks, Imani was treated for a large tumor in the left side of her brain. She is now tumor free thanks to the treatment she received at St. Jude! Subscribe to St. Jude ►► http://bit.ly/Subscribe2StJude

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Seb's story
Seb's story administrator 2 Views • 2 years ago

Three-year-old Seb was diagnosed with Medulloblastoma, a type of malignant brain tumour that is most commonly found in children and accounts for roughly 15-20% of all childhood brain tumours. Medulloblastoma usually develops in a part of the brain called the posterior fossa at the back of the head and can spread to other parts of the brain as well as the spinal cord, requiring complex, major surgery to remove it.

As the specialist centre for both oncology and neurosurgery in the South West, Seb travelled hundreds of miles from his home in Cornwall to Bristol Children’s Hospital for lifesaving treatment. After undergoing the complex procedure which successfully removed Seb’s tumour, he unfortunately acquired a common, but severe, neurological condition called Posterior Fossa Syndrome. His condition meant he lost the ability to walk, talk and even swallow.

For lots of children like Seb with an acquired brain condition or injury providing early neurorehabilitation is essential and plays a vital role in their recovery. Bristol Children’s Hospital is not only the busiest but the longest established specialist paediatric neurorehabilitation service in the South with often 10 or 11 patients under their care and most of these are children under the age of four.

The Sunflower Ward, the first of its kind in the country, is specifically designated for neurorehabilitation and has eight beds. Here children are cared for by an experienced interdisciplinary team including Neurosurgeons, Neuropsychologists, Specialist Nurses and Therapists as well as a hospital school to name just a few. They cater for the wide range of needs their young patients have and neurorehabilitation includes a variety of therapies that aims to compliment this such as physio, arts, music and play.

For young Seb, sensory support and play therapy formed an important part of his recovery.

Seb is one of many young children affected by a broad spectrum of neurological conditions that the neurosurgery and neurorehab service cares for and his incredible progress is a testament to the pioneering work that goes on behind Bristol Children’s Hospital doors.

If you’d like to fundraise for the Neurosurgical team and support their lifesaving work, get in touch with us on 0117 927 3888 or contact our fundraising team via hello@grandappeal.org.uk.

Lab or Diagnostic Findings: Homer Wright Rosettes (neuroblastoma, medulloblastoma, retinoblastoma)
Lab or Diagnostic Findings: Homer Wright Rosettes (neuroblastoma, medulloblastoma, retinoblastoma) administrator 3 Views • 2 years ago

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Assessing Brain Tumor Treatments, Patient Tips: Patient, Survivor, Caregiver Conference Day 2
Assessing Brain Tumor Treatments, Patient Tips: Patient, Survivor, Caregiver Conference Day 2 administrator 0 Views • 2 years ago

From brain tumor boards to holistic management, such as acupuncture, stress management, yoga and more, watch the 2020 ABTA National Conference, Day 2 to help you make informed decisions along the brain tumor journey.

This conference is chaired by:

Mark R. Gilbert, MD, Chief and Senior Investigator, The Neuro-Oncology Branch, Center for Cancer Research at the National Cancer Institute, National Institutes of Health and

Jean Arzbaecher, RN, APN, CNRN, Advanced Practice Nurse at the University of Illinois at Chicago.

--Video Contents--

00:00 Welcome
08:21 Brain Tumor Board
1:19:21 NeuroD1 Dictates Tumor Cell Differentiation in Medulloblastoma
1:24:27 The Importance of Patient Outcomes Assessments in Determining Optimal Treatment
2:07:47 Meet the ABTA Board of Directors
2:26:56 Selinexor in GBM: XPORT-GBM-029. A Phase 1/2 Study of Selinexor in Combination with Standard of Care Therapy for Newly Diagnosed or Recurrent Glioblastoma
2:30:31 NorthShore Neurological Institute’s Brain Tumor Program: Procedures, Innovations, Clinical Trials, and a Multispecialty Team – NorthShore University Health System
2:33:24 A Novel Pressure-Reducing Therapy to Abrogate Tumor Invasiveness and Immune Infiltration in Glioblastoma
2:37:50 Microcircuit Platform to Screen Ion Channel Blockers for Medulloblastoma
2:42:19 Programming Tumor-Clearing Macrophages with Targeted Gene Therapy
2:46:22 DCVax® Personalized Immune Therapies: Explanation of what dendritic cell therapies (such as DCVax) are, how they work and how they are different from other kinds of treatments for GBM
2:53:47 Zero in on Brain Metastases: Leksell Gamma Knife Icon
2:56:59 Thought Leader Liaison: An FDA Approved treatment for Glioblastoma
3:06:18 Clinical Trials: A Primer
3:49:10 Clinical Trials: Panel Discussion with Experts
4:15:31 Radiogenomic Prediction of Pediatric Medulloblastoma Molecular Subgroup
4:21:04 Holistic Management of Brain Tumor Symptoms
5:04:53 An Investigation of Telomere Maintenance Mechanism in ATRX Mutant Gliomas
5:10:40 Caring for The Caregiver
5:54:52 Targeting TLR2 in EGFR/EGFRvIII+ Glioblastoma
5:59:30 Living with a Brain Tumor: Patient and Caregiver Panel - Facilitator: Jean Arzbaecher, RN, APN, CNRN and 3 Patient and Caregiver Panelists: Donna and Paul Van Ryn, Aisha Khalid Khan and Khola Shuaib, Steffanie and Scott Flack
6:45:23 Closing Comments & Adjournment

The ABTA National Conference is the largest brain tumor educational event, designed for patients, caregivers and their loved ones, presented by our nation's leading brain tumor experts. For upcoming conferences, visit
https://www.abta.org/national-conference/.

For more information about brain tumors, resources and/or support, call the ABTA CareLine at 800-882-2282, email info@abta.org or visit https://www.abta.org/.

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