Craniopharyngioma - Childhood

PNOC Craniopharyngioma Webinar June 10, 2021
PNOC Craniopharyngioma Webinar June 10, 2021 administrator 5 Views • 2 years ago

The Pacific Pediatric Neuro-Oncology Consortium (PNOC) is an international consortium, led by Dr. Sabine Mueller and Dr. Michael Prados, with centers within the United States, Europe, Asia and Australia. PNOC are dedicated to bringing new therapies to children and young adults with brain tumors. PNOC's goal is to improve outcomes by translating the latest findings in brain tumor biology into better treatments for these children.

As part of our ongoing webinar series on June 10th, 2021 we presented the PNOC Craniopharyngioma webinar to provide updates on research and clinical trials and to answer patient family questions.
Learn more about the PNOC Craniopharyngioma Working Group:
https://pnoc.us/research-group/craniopharyngioma/
For information on PNOC clinical trials, please email info@pnoc.us.

FEATURED SPEAKERS:

Dr. Fatema Malbari Director, Neuro-Oncology, for the Division of Neurology, Assistant Professor Division of Pediatric Neurology and Developmental Neurosciences at Texas Children's Hospital, Baylor College of Medicine

Dr Cassie Kline Attending Physician, Director, Neuro-Oncology Clinical Research; Kortney Rose Foundation Clinical Researcher in Neuro-Oncology; Division of Oncology, The Children’s Hospital of Philadelphia; Director of Data Quality and Integration, Pacific Pediatric Neuro-Oncology Consortium (PNOC)

Dr. Maya Lodish Selna L. Kaplan Chair Distinguished Professorship in Pediatric Endocrinology/Diabetes; Professor of Pediatrics University of California, San Francisco; Department of Pediatrics Division of Pediatric Endocrinology

Dr. Nalin Gupta Chief, Division of Pediatric Neurosurgery, UCSF Benioff Children’s Hospital; Professor, Neurological Surgery
UCSF Weill Institute for Neurosciences

Dr. Shannon Lundy Pediatric Neuropsychologist, Associate Clinical Professor, Department of Pediatrics; Director of Psychology Services, Division of Developmental Medicine; Neurodevelopmental Program Director for the CRS/CTSI Neurodevelopmental Assessment Program, UCSF

and PNOC Project Leaders Dr. Sabine Mueller and Dr. Michael Prados

For more information on PNOC and PNOC's Craniopharyngioma Research Group please visit https://pnoc.us

If you would like to learn more about PNOC Foundation or support Craniopharyngioma research please visit https://www.pnocfoundation.org

PNOC is not only a collaboration of doctors, scientists and patient families, it also represents a collaboration of funders and advocates. We gratefully acknowledge the support of PNOC's Craniopharyngioma work and this webinar by following collaborations foundations: Dragon Master Foundation, Tommy Strong Foundation, National Brain Tumor Society, Robert Dawes Foundation and Raymond A. Wood Foundation.

Craniopharyngioma: Keyhole and Endoscopic Endonasal Surgery
Craniopharyngioma: Keyhole and Endoscopic Endonasal Surgery administrator 4 Views • 2 years ago

Craniopharyngioma: Keyhole Surgery
Endoscopic Endonasal & Supraorbital Eyebrow Tumor Removal

In this video, Dr. Daniel Kelly, Director of the Pacific Brain Tumor Center at Pacific Neuroscience Institute describes where craniopharyngiomas arise, the symptoms they produce and how they are best treated using endonasal endoscopic and keyhole surgical techniques, as well as the potential need for radiosurgery, radiotherapy and hormone replacement.

Craniopharyngiomas are rare, benign tumors that develop in the region of the pituitary gland and its adjacent neural structures, particularly the optic nerves (nerves from the eye) and the hypothalamus (controlling regulatory functions of the body). These tumors can present with vision loss, double vision, hormone imbalance, headaches or other neurological problems. The best initial treatment for a craniopharyngioma is maximal surgical removal. Fortunately for most patients, craniopharyngiomas can be removed through a keyhole route via the nose using an endonasal endoscopic approach or a supraorbital eyebrow craniotomy.

At the Pacific Brain Tumor Center, we have one of the world's largest experiences treating these tumors with endoscopic and keyhole approaches, as well as treating residual and recurrent craniopharyngiomas. By incorporating cutting edge technology and instrumentation with proven surgical experience, we make craniopharyngioma surgery safer, less invasive and more effective. Most patients with a craniopharyngioma will need some form of pituitary hormone replacement and a number of patients may need radiosurgery or focused radiotherapy to prevent tumor regrowth. Our neurosurgeons work closely with our endocrinologists and radiation oncologists to provide the best possible individualized care.

pacificneuro.org | pacificbraintumor.org | 310-582-7450

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