Rare Disease Day 28th Feb 2019 | Wesley Medical Research

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07/10/23

[Rare Diseases Day - 28 February]

Ataxia-Telangiectasia is a rare genetic disease that combines the worst aspects of cerebral palsy, muscular dystrophy and cystic fibrosis - and on top of all of that... affects children and young adults.

Twice a year, Wesley Medical Research supports and hosts the A-T Clinic, enabling patients to see experts who have experience dealing with the symptoms and side effects of the genetic disorder, as well as gathering essential data and research to assist in finding a cure.

Together, the A-T community of families, clinicians and researchers support the goal of making this rare disease even rarer.

#rarediseaseday #showyourrare #showyoucare