Part 6 - Uterine Papillary Serous Carcinoma (UPSC) - A Rare Form Of Endometrial Cancer

4 Views

09/30/23

In part 6 of this series, I provide an update on my health status, mention where to find information on UPSC and support groups (links to these sites are below), discuss a few terms associated with UPSC - CA125, MSI and TMB. I did make an error in the beginning of the video when I stated that I received carboplatin and taxotere, it was not taxotere, it was taxol. I did not mention the chemotherapy and immunotherapy drugs that I received and talked about in prior videos so I will provide the names here.

1.I was first diagnosed and had a hysterectomy in March of 2017 when I was 65, I am 70 now. Started Taxol and Carbo I believe in May of 2017 (6 cycles), then had radiation (30 treatments) which ended at the end of 2017.
2.April 2017: carbo/taxol x6cycles
Germline Testing: Sept 2017: 23 gene panel.
HER2 amplified reflex to FISH 2+equivocal
Somatic Testing: Oct 2018 - Foundation One
MMR Status: March 2017 Surgical pathology Normal IHC
Hormone Receptor: +ER/-PR. 7/26/2018
3. May 2018: carbo/taxotere/Herceptin x6
4. April 2019: atezolizumab on study (My Pathway at UC) x 2 cycles.
-While on treatment developed large PE and was on brief steroid taper
5. June 2019: doxil/Avastin x 7 cycles
6. Jan 2020: Abraxane x17cycles
7. May 2021: Laparoscopic ileocecal resection
8. June 2021-present: pembrolizumab (Keytruda)

Here are the links to the websites and support groups that I mentioned:

National Comprehensive Cancer Network:
https://www.nccn.org
National Cancer Institute:
https://www.cancer.gov
Cancer Survivors Network:
https://csn.cancer.org/categories/uterine
Clinical Trials:
https://clinicaltrials.gov
Testing:
https://www.testing.com
Foundation Medicine :
https://www.foundationmedicine.com

Facebook Support Group:
UPSC-Uterine Papillary Serous Carcinoma Group (must log in and join)

Wigs
https://www.youtube.com/@TAZSWIGCLOSET

Links to other videos in this series:
Part 1 - https://www.youtube.com/watch?v=3pMdCcuQrH0&t=220s

Part 2 - https://www.youtube.com/watch?v=jAiGZlPWgjc&t=22s

Part 3 - https://www.youtube.com/watch?v=qiLGch-Hb8k

Part 4 - https://www.youtube.com/watch?v=J4ze1Kljk6I

Part 5 - https://www.youtube.com/watch?v=DvHNzH9os6s&t=116s

Part 6 - https://www.youtube.com/watch?v=Ov9cupLdmrU&t=4s

Part 7 - https://www.youtube.com/watch?v=PHdl5RBLIck

If you found this video to be helpful, it would be greatly appreciated if you could give it a like and subscribe which will help this channel grow and hit the bell icon so you can receive a notification when I post new content. You are welcome to email me at noelle.lake500@gmail.com Thank you for watching!