Mastocytosis - An Orphan Disease

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07/09/23

I'm sorry this video is long but I wanted to be as informative as possible. There are so many people out there who have NEVER heard of this rare, incurable and life threatening disease so it is my mission to have my voice heard about MASTOCYTOSIS. I'm not doing this just for my daughter but for everyone else who suffers from this horrible disease. I am here to help those who suffer RAISE AWARENESS. WE NEED TO FIND A CURE!! I DO NOT make any profit from doing these videos and I have permission to use Giovanni Lamanna's song "We Look To You". Thank you to all of you who have helped make this video possible by allowing me to use your photos. Together we can SPREAD THE WORD AND RAISE AWARENESS TO FIND A CURE!!