Hodgkin's Lymphoma Survivor Story | Getting Diagnosed

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06/26/23

CC Webster is a Hodgkin's Lymphoma Survivor. This is her story.

She was 29 when she was diagnosed with stage IV Hodgkin lymphoma, after a misdiagnosis of mono. She says she had to push for real answers after realizing something wasnโ€™t right with her body.

Here she is sharing her memories of getting diagnosed, pushing for an appointment, and learning how to ask for help.

You can find her entire story at The Patient Story: https://[a]www.thepatientstory.com%2Fcancers%2Fhodgkin-lymphoma%2Fiv-cc[/a]

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Background:

The Patient Story turns in-depth interviews from recent cancer survivors into a FAQ format-story along with timelines to give newly diagnosed patients and caregivers a sense of what their lives may look like in the upcoming months. Hear straight from the people who've already been through it.

TPS (formerly OneDavid) was started by Stephanie Chuang, a non-Hodgkin lymphoma survivor, who wants cancer patients and caregivers to get the information they need in a human way, not with medical jargon. Visit www.ThePatientStory.com for more.

If you would like to share a story, give feedback, or just say hello, we'd also love to hear from you! Please write us at support@thepatientstory.com.

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A message from our founder:

My name is Stephanie.

In 2013, I found a story that touched my heart: a group of friends were fighting to raise awareness about bone marrow donations for a young woman who'd been diagnosed with non-Hodgkin lymphoma. It had spread to her brain.

Nina was in dire need of a bone marrow transplant. She's of Asian descent, which narrowed her odds of finding a match (fewer people of the same race and ethnicity registered to donate).

The good news: she found a donor! The wife and mother of two is living happily. I couldn't be happier.
The "odd" news: I was diagnosed with the same cancer, same sub-type just three years later.

That motivated me to create The Patient Story: a company to help cancer patients and caregivers by giving them real answers from real people - people who've actually been through the experience.

Find more at www.thepatientstory.com
Where it all started: https://youtu.be/8VDIjwO9Smg

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