Happy Li-Fraumeni Syndrome Awareness Month 2023!

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07/05/23

Hello everybody. It's Trish and Andi with Living LFS. Hey. Hi. So today starts Li-Fraumeni Syndrome Awareness Month. Happy March. Happy March. So I want you to be sure that you're following all of our socials. Because we are gonna be sharing all kinds of information and ways that you can help. And if you are an LFS family that could use some extra funds, you need to head over to our website, which is http://LFSawareness.com. We are offering hardship grants. You have until March 6th to put in your application if you are in need of financial assistance. We are going to be offering at least a minimum of ten $1,000 hardship grants to families in need on LFS Awareness Day, which is March 20th, in honor of our founder, miss Jennifer Mallory. So be sure you're following along. We're gonna take the time to educate you, things that you can share, and ways that you can get involved, because you all know that community is the best way to get through this crap that we have to deal with. And on March, 20th LFS Awareness Day, we are gonna actually be doing an educational online presentation with Jackie Schienda. She's a genetic counselor, and she's also a member of the Board of Directors of Living LFS. She's gonna talk about the Li-Fraumeni spectrum. So for everybody that's been wondering what your mutation means, and all of that, this is your chance to get all your questions answered. Yes. Go to that page, LFSawareness.com. You'll see that there's a section on events and activities, you can register for that event, and we'll have a lot of other stuff happening on March 20th, too, but we're gonna keep that a secret until later. Right! So follow along. Happy LFS Awareness Month. Happy Ls. We love you. Go mutants! Go mutants. Thank you.

Li-Fraumeni Syndrome, or LFS, is a hereditary cancer disorder linked to a mutation of the TP53 tumor suppressor gene. People with LFS have a greatly increased risk of developing cancer, or even multiple cancers, throughout their lives. Multiple family members with LFS may be battling cancer at the same time. Parents with LFS have a 50/50 chance of passing it to their kids, and half of LFS cancers develop before the age of 30. The mission of Living LFS is to encourage, empower, and educate those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS. Our core values are Community, Compassion, Respect, Integrity and Levity. We connect our members, we support them, we respect their decisions, we focus our energy and resources on the LFS community we serve - and we focus on positivity, laughter and Living. We are Living LFS.