Episode #42: Advice for Someone Going Deaf (Neurofibromatosis - NF2) #podcast #waterprairie
Episode #42: Advice for Someone Going Deaf (Neurofibromatosis - NF2)
Peter Burton joins the podcast today to discuss how neurofibromatosis type 2 has changed his life. Peter openly shares his advice for someone going deaf as he talks about what happens when you go deaf. This honest conversation covers questions such as should you disclose you are deaf on a job applications, deaf accommodations at work, and what tools help the deaf communicate with the hearing.
Peter encourages listeners to try to communicate with those who are deaf by learning some simple signs to start the conversation and then shares his favorite app he uses, Live Transcribe. In fact, it was through this app that he and Tonya were first able to communicate when they met.
Some of the technology suggestions mentioned during this interview can be found on the episode page at https://waterprairie.com/2022/11/20/going-deaf/.
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Chapters:
00:00:00 Start
00:00:40 Introducing Peter
00:03:22 Water Prairie Chronicles Intro
00:03:41 What is NF2?
00:07:58 How rare if NF2?
00:09:10 What causes NF2?
00:09:21 When did you find out you had NF2?
00:13:29 How has NF2 impacted your life?
00:16:34 Hearing to Hearing Loss
00:20:01 How did you react to going deaf?
00:24:47 Learning ASL
00:26:43 Meet Cassie
00:27:18 Tools for the deaf
00:30:41 Advice for someone going deaf
00:32:33 When disclose disability on job application?
00:38:17 Accommodations at work
00:39:29 Vocational Rehab and Job Coach
00:42:08 Contact info
00:42:32 Help for NF2 parents
00:44:19 Speed Round
00:48:09 Thank you
00:49:23 Support the podcast
00:49:43 Suggested videos
Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/
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