College Student Affected With Gorlin Syndrome to Share Insights During April 12th Webinar
Delaney Sprague, a college student affected with Gorlin syndrome, is learning to become more independent with her life, including scheduling her appointments with her doctor, decisions about the medical management of her health, and steps she takes for sun protection. Register now to join Delaney, and her dad Tom, on Wednesday, April 12th, at 8:30 p.m. Eastern time, for the the final webinar in our four-part series for kids of all ages affected by Gorlin Syndrome. This webinar will focus on children ages 16 and older as they transition into adulthood. They'll be joined by Dr. Elena Hawryluk, a pediatric dermatologist and associate professor of dermatology at Harvard Medical School, and Julie Breneiser, the executive director of the Gorlin Syndrome Alliance. Register now at www.gorlinsyndrome.org/webinars
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