ASH 2019 Interview - Prof Andrew Evens - HoLISTIC Hodgkin Lymphoma International Study
Prof Andy Evens, Haematologist from Rutgers Cancer Institute of New Jersey USA, spoke with Donna Gairns, National Lymphoma Nurse Manager from Lymphoma Australia at ASH 2019, Orlando, Florida.
Prof Evens is an active member of the HoLISTIC (Hodgkin Lymphoma International Study for Individual Care) - an international consortium coalescing a team of diverse experts from across the world to study the salient aspects of Hodgkin lymphoma prognosis, epidemiology, treatment, survivorship and health outcomes across all age groups.
The consortium consists of 50+ investigators, patients and representatives from the advocacy community. Investigators include pediatric and adult oncologists, nuclear medicine and PET experts, decision-making scientists, cancer statisticians and cancer epidemiologists.
They are harmonizing individual patient data from more than 20 contemporary clinical trials from North America and Europe of all ages as well as 6 institutional and regional Hodgkin lymphoma registries, and a large community oncology practice. Their goal is to enhance decision-making for pediatric and adult Hodgkin lymphoma patients and providers, given expanding treatment options and in the absence of complete acute and long-term prognostic data. They are establishing modern, robust and dynamic decision models for short-term disease outcomes and projecting longer-term estimates for absolute risk(s) of late effects and impacts of health-related quality of life.
Lymphoma Australia and the Lymphoma Coalition are providing support for the group. For more information visit their website: www.hodgkinconsortium.com
www.lymphoma.org.au
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