Amyloidosis Awareness 2021
Learn about amyloidosis in this short, educational video narrated by Michael York. You can get support and find more information about amyloidosis on the Amyloidosis Support Groups website, https://www.amyloidosissupport.org plus download the pamphlet referenced at the end of the video at http://www.amyloidaware.com
Please like and share this video! You'll promote awareness and understanding of this under-diagnosed disease for patients, caregivers, and health care providers.
About Amyloidosis
All of the normal proteins in our body are biodegradable and recyclable. Amyloidosis is a disease in which abnormal proteins (amyloid) are resistant to being broken down. As a consequence, the amyloid proteins deposit and accumulate in the bodyโs tissues. If amyloid builds up in the kidney, heart, liver, gastrointestinal tract or nerves, it causes those organs to function poorly. Thus, the symptoms of amyloidosis are associated with the abnormal functioning of the organs involved. Typically, patients will have some of the following symptoms: unexplained weight loss, fatigue, shortness of breath, foamy urine, swelling in the ankles and legs, as well as numbness and tingling in the hands and feet. These are manifestations of damage to the underlying organs from the insoluble amyloid protein. Treatments are designed either to dissolve the amyloid deposits or to interrupt their production. Left untreated, the disease can be life-threatening. Therefore, early and accurate diagnosis is the key to promoting positive outcomes.
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