Allergic to sunlight | Living with Xeroderma Pigmentosum [XP]
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Lizzie Tenney suffers from the rare skin disorder Xeroderma Pigmentosum; meaning she burns and blisters like an extreme sunburn after being exposed to the sun for just minutes. There are only around 300 diagnosed cases of XP in the United States, making Lizzie truly one in a million.
Xeroderma Pigmentosum is an uncommon degenerative disease that causes the skin to be unable to repair its own DNA once exposed to and damaged by the sunlight’s ultraviolet (UV) rays, often resulting in skin cancer, neurological problems, and developmental delays.
In Lizzie’s case, she has had surgery for skin cancer 43 times in her 22 years. The 22-year-old from Highland, Utah, uses a special meter that measures the level of UV rays and tells her when it is safe to go outside, or how much protective gear to wear.
Director Sohrab Mirmont
Cinematographer Sohrab Mirmont
Producers Camile Rocha-Keys and Ruby Coote
Gaffer Mario DeAngelis
B-unit Camera Operator Mario DeAngelis
Editor Josh Halil
Produced for Barcroft Media, UK.
Link to original video via Barcroft TV: https://www.youtube.com/watch?v=b7oFEblHKyc&t=1s
See more from Mirmont Pictures at www.mirmont.net.
Simply inspiring.
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