Rhabdomyosarcoma - Childhood


BrandiLee, mother of Finn, a pediatric patient at Mayo Clinic, shares advice on preparing for you or your child’s journey with a Mayo Clinic rhabdomyosarcoma surgical team. To learn more, visit To learn more, visit https://mayocl.in/2YiqI9z


Rhabdomyosarcoma is a rare type of cancer. Although associated with children, the disease is also present in adults where it poses unique treatment challenges. In this episode of Cancer Newsline, Andrea Hayes-Jordan, M.D., talks about rhabdomyosarcoma in both pediatric and adult patients. Request an appointment at MD Anderson online at https://my.mdanderson.org/RequestAppointment or by calling 1-877-632-6789.


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What targeted treatments can be used for children with cancer, and in particular, rhabdomyosarcoma, a cancer that resembles developing skeletal muscle. Childhood cancer survivor Louis and his twin sister Grace explain some of the life-saving research being funded by Children with Cancer UK.
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Dr. Carola Arndt, a Mayo Clinic oncologist, discusses symptoms, evaluation & diagnoses, and finally treatment of rhabdomyosarcoma in pediatric patients. To learn more about rhabdomyosarcoma care at Mayo Clinic, visit: https://mayocl.in/37L5AOY
Dr. Arndt also discusses Mayo Clinic's involvement in the Children's Oncology Group which studies cancer in children. Through the Children's Oncology Group, Mayo Clinic has access to a number of clinical trials for rhabdomyosarcoma.
To request an appointment at Mayo Clinic, visit: https://mayocl.in/33myGRn


Before Rebecca was diagnosed with Rhabdomyosarcoma, she was like many sporty eight-year-olds. She enjoyed swimming and tumbling around at gymnastics.
In 2014, her parents noticed a swelling around her thigh and knee. But a week later a large bruise appeared on the back of her knee, so her dad took her to the GP. The doctor referred her to hospital for some more tests including an ultrasound. They had found a blood clot in her groin, a tumour in her thigh and a tumour in her knee.
A biopsy revealed it was rhabdomyosarcoma: soft tissue cancer found in the muscles, bones, soft tissue areas. Rebecca was confused about what had happened, she didn’t want to be like this.
After finding more tumours and realising the cancer had spread, doctors brought Rebecca in to start chemotherapy the next day. A few months later in July, Rebecca had leg surgery to remove the biggest tumour, but they couldn’t remove it all.
Rebecca was getting back to normal life but still had to have constant check-ups and scans. At the start of 2017, Rebecca found a lump in her leg at school. A biopsy followed the day after her 11th birthday and in February 2017, she got her scan results. She had relapsed.
A few months later, Rebecca went through more operations on her leg, due to her tumour being wrapped around the artery of her right thigh. She had to learn how to walk again, and from August until November she had radiotherapy on her whole leg. At the end of 2017, Rebecca was in remission again.
Rebecca is currently recovering from her latest surgery in March 2020, and her latest test results have been really positive. However, she is now in 12 weeks isolation at home due to the risk posed by the coronavirus.
Her family remain optimistic, with Rebecca already going through so much treatment. Her mother is hoping for the best as she enters her seventh year of treatment.
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