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Help elderly cancer patients abandoned by their families
00:01:46
Help elderly cancer patients abandoned by their families
4 Pogledi . 07/19/23 administrator
Art for Eyes supports families impacted by retinoblastoma
00:03:07
Art for Eyes supports families impacted by retinoblastoma
3 Pogledi . 07/16/23 administrator
BRA Day helps breast cancer survivors, families learn more about breast reconstruction
00:02:28
BRA Day helps breast cancer survivors, families learn more about breast reconstruction
2 Pogledi . 07/13/23 administrator
Palliative Care for Patients and Families with PSP, CBD and MSA
00:35:11
Palliative Care for Patients and Families with PSP, CBD and MSA
1 Pogledi . 07/13/23 administrator
Palliative Care for Patients and Families with PSP, CBD and MSA
00:35:11
Palliative Care for Patients and Families with PSP, CBD and MSA
5 Pogledi . 07/13/23 administrator
Overcoming Cancer Pain: A Guide For People with Cancer, Their Families & Friends
00:16:38
Overcoming Cancer Pain: A Guide For People with Cancer, Their Families & Friends
6 Pogledi . 07/13/23 administrator
Intervening early to support families after child and adolescent cancer
01:00:57
Intervening early to support families after child and adolescent cancer
3 Pogledi . 07/11/23 administrator
VA Benefits for Veterans With Serious Illness and Their Families Webinar
01:07:29
VA Benefits for Veterans With Serious Illness and Their Families Webinar
1 Pogledi . 07/10/23 administrator
Living A Full Life With Ataxia | My Perfect Family | Real Families
00:28:44
Living A Full Life With Ataxia | My Perfect Family | Real Families
2 Pogledi . 07/10/23 administrator
Childhood Cancer Part 2: The Second Half of Our Families Journey through Hodgkin's Lymphoma
01:09:35
Childhood Cancer Part 2: The Second Half of Our Families Journey through Hodgkin's Lymphoma
1 Pogledi . 07/09/23 administrator
Childhood Cancer Part 1: Our Families Journey through Hodgkin's Lymphoma
01:03:01
Childhood Cancer Part 1: Our Families Journey through Hodgkin's Lymphoma
7 Pogledi . 07/09/23 administrator
Families with Childhood Cancer Survivors Share Their Stories
00:01:39
Families with Childhood Cancer Survivors Share Their Stories
1 Pogledi . 07/03/23 administrator
Families with a Childhood Cancer Survivor Share Their Stories #cancer #childhoodcancer
00:01:01
Families with a Childhood Cancer Survivor Share Their Stories #cancer #childhoodcancer
3 Pogledi . 07/03/23 administrator
Families with a Childhood Cancer Survivor Share Their Stories #cancer #childhoodcancer
00:01:01
Families with a Childhood Cancer Survivor Share Their Stories #cancer #childhoodcancer
2 Pogledi . 07/03/23 administrator
Race Against Time | Families with kids diagnosed with aging disease remain positive | Sunday Night
00:20:24
Race Against Time | Families with kids diagnosed with aging disease remain positive | Sunday Night
4 Pogledi . 07/03/23 administrator
Mesothelioma - Families Share Hope, Strength at Miles for Meso
00:08:18
Mesothelioma - Families Share Hope, Strength at Miles for Meso
7 Pogledi . 07/02/23 administrator
Genetic Counseling for Pancreatic Cancer Patients and Families: Review and Updates During COVID-19
00:55:05
Genetic Counseling for Pancreatic Cancer Patients and Families: Review and Updates During COVID-19
16 Pogledi . 06/30/23 administrator
Why Does Lynch Syndrome Occur in Families? | Dana-Farber Cancer Institute
00:33:49
Why Does Lynch Syndrome Occur in Families? | Dana-Farber Cancer Institute
3 Pogledi . 06/29/23 administrator
Resources for Families with Tuberous Sclerosis Complex & Infantile Spasms
00:03:00
Resources for Families with Tuberous Sclerosis Complex & Infantile Spasms
3 Pogledi . 06/27/23 administrator

Skraban-Deardorff Families

5 Pogledi • 07/09/23
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Meet some of our joyful children and their families as they describe how Skraban-Deardorff Syndrome has impacted their lives.

Correction to the credits: Kevin Vlaescu, son of Daniela Vlaescu

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Auto Play

Help elderly cancer patients abandoned by their families
00:01:46
Help elderly cancer patients abandoned by their families
4 Pogledi . 07/19/23 administrator
Art for Eyes supports families impacted by retinoblastoma
00:03:07
Art for Eyes supports families impacted by retinoblastoma
3 Pogledi . 07/16/23 administrator
BRA Day helps breast cancer survivors, families learn more about breast reconstruction
00:02:28
BRA Day helps breast cancer survivors, families learn more about breast reconstruction
2 Pogledi . 07/13/23 administrator
Palliative Care for Patients and Families with PSP, CBD and MSA
00:35:11
Palliative Care for Patients and Families with PSP, CBD and MSA
1 Pogledi . 07/13/23 administrator
Palliative Care for Patients and Families with PSP, CBD and MSA
00:35:11
Palliative Care for Patients and Families with PSP, CBD and MSA
5 Pogledi . 07/13/23 administrator
Overcoming Cancer Pain: A Guide For People with Cancer, Their Families & Friends
00:16:38
Overcoming Cancer Pain: A Guide For People with Cancer, Their Families & Friends
6 Pogledi . 07/13/23 administrator
Intervening early to support families after child and adolescent cancer
01:00:57
Intervening early to support families after child and adolescent cancer
3 Pogledi . 07/11/23 administrator
VA Benefits for Veterans With Serious Illness and Their Families Webinar
01:07:29
VA Benefits for Veterans With Serious Illness and Their Families Webinar
1 Pogledi . 07/10/23 administrator
Living A Full Life With Ataxia | My Perfect Family | Real Families
00:28:44
Living A Full Life With Ataxia | My Perfect Family | Real Families
2 Pogledi . 07/10/23 administrator
Childhood Cancer Part 2: The Second Half of Our Families Journey through Hodgkin's Lymphoma
01:09:35
Childhood Cancer Part 2: The Second Half of Our Families Journey through Hodgkin's Lymphoma
1 Pogledi . 07/09/23 administrator
Childhood Cancer Part 1: Our Families Journey through Hodgkin's Lymphoma
01:03:01
Childhood Cancer Part 1: Our Families Journey through Hodgkin's Lymphoma
7 Pogledi . 07/09/23 administrator
Families with Childhood Cancer Survivors Share Their Stories
00:01:39
Families with Childhood Cancer Survivors Share Their Stories
1 Pogledi . 07/03/23 administrator
Families with a Childhood Cancer Survivor Share Their Stories #cancer #childhoodcancer
00:01:01
Families with a Childhood Cancer Survivor Share Their Stories #cancer #childhoodcancer
3 Pogledi . 07/03/23 administrator
Families with a Childhood Cancer Survivor Share Their Stories #cancer #childhoodcancer
00:01:01
Families with a Childhood Cancer Survivor Share Their Stories #cancer #childhoodcancer
2 Pogledi . 07/03/23 administrator
Race Against Time | Families with kids diagnosed with aging disease remain positive | Sunday Night
00:20:24
Race Against Time | Families with kids diagnosed with aging disease remain positive | Sunday Night
4 Pogledi . 07/03/23 administrator
Mesothelioma - Families Share Hope, Strength at Miles for Meso
00:08:18
Mesothelioma - Families Share Hope, Strength at Miles for Meso
7 Pogledi . 07/02/23 administrator
Genetic Counseling for Pancreatic Cancer Patients and Families: Review and Updates During COVID-19
00:55:05
Genetic Counseling for Pancreatic Cancer Patients and Families: Review and Updates During COVID-19
16 Pogledi . 06/30/23 administrator
Why Does Lynch Syndrome Occur in Families? | Dana-Farber Cancer Institute
00:33:49
Why Does Lynch Syndrome Occur in Families? | Dana-Farber Cancer Institute
3 Pogledi . 06/29/23 administrator
Resources for Families with Tuberous Sclerosis Complex & Infantile Spasms
00:03:00
Resources for Families with Tuberous Sclerosis Complex & Infantile Spasms
3 Pogledi . 06/27/23 administrator