Identifying children with NF1 at risk for developing brain tumors

Courtney Dunn, PT DPT, recently led a clinical study which showed that children with both NF1 and reduced muscle tone (hypotonia) were more likely to have brain tumors than were children with NF1 and normal muscle tone. These findings inspired the current prospective study to determine whether a diagnosis of hypotonia can be used to identify children with NF1 most likely to have brain tumors. Your participation involves being evaluated by Dr. Dunn as a part of your routine visit to the NF Clinical Program at St. Louis Children's Hospital.