Genetic testing helped Art Still to survive amyloidosis | stenosis | atrial fibrillation

"You can’t fight what you don’t know." – Art Still

After 12 hard-hitting seasons in the NFL, Art Still, former Kansas City Chiefs and Buffalo Bills defensive end, accepted the physical wear and tear that came with the game—carpal tunnel syndrome, trigger finger, even a torn biceps. But when he experienced atrial fibrillation, he knew it was different. It was his body sending a stronger signal—and it ultimately led to a life-changing diagnosis. Art shares his story with the @CancerInterviews podcast.

Through the NFL Players Association, Art underwent a comprehensive physical and mental evaluation in New Orleans. His doctor, taking into account Art’s family history of heart failure and replacement surgeries, recommended a genetic test. The results were sobering: Art carried the V122I variant associated with hereditary transthyretin amyloidosis (hATTR), a rare but serious condition often underdiagnosed in African-American men, affecting approximately 1 in 25.

Though amyloidosis isn’t technically cancer, if left undetected and untreated, it can lead to organ failure and has been linked to multiple forms of blood cancer, particularly due to protein buildup in vital systems. In Art’s case, the risk extended to the heart, kidneys, and even neurological systems, including symptoms of nephropathy and spinal stenosis.

What is Amyloidosis?
Amyloidosis is a progressive condition caused by abnormal deposits of a protein called amyloid in tissues and organs. Over time, these deposits can impair vital function—particularly in the heart, nervous system, and kidneys. It often mimics common age-related diseases, leading to late or missed diagnoses.

Why Genetic Testing Matters
Art’s diagnosis highlights the importance of early genetic testing. Although the V122I genetic variant cannot be removed, ongoing treatment—including periodic shots, prescribed medication, and lifestyle modifications—can slow its progression and prevent complications, such as cardiac amyloidosis, stroke, and blood cancer.

Art’s Wellness Regimen

Now on a structured regimen, Art focuses on:

Consistent medication and monitoring

A disciplined routine of diet, exercise, and sleep

Staying informed and proactive in his care

By taking these steps, Art has remained active, alert, and determined—not just for his own health but for others who might unknowingly carry the same genetic risk.

Raising Awareness & Taking Action

Art has since launched Amyloidosis Army, a nonprofit dedicated to education, support, and early diagnosis of amyloidosis and related conditions. His mission: to arm patients, families, and providers with the tools to fight back before symptoms become life-threatening.

Whether you’re dealing with:

Unexplained fatigue, swelling, or arrhythmia

Family history of heart failure or sudden cardiac death

Neurological symptoms like carpal tunnel or trigger finger

Diagnoses like stenosis or nephropathy with no clear cause...

You owe it to yourself and your family to consider genetic screening and speak with a specialist about amyloidosis. It may save your life—or someone you love.

Key Takeaways:

Amyloidosis is manageable if caught early.

Genetic testing can reveal silent risks—especially in high-risk populations.

Treatments won’t cure the condition but can keep it from progressing into blood cancer or organ failure.

Awareness saves lives.

Learn more & take action today:
Visit Art Still’s official site: AmyloidosisArmy.org

Subscribe, Like, and Share this video to help spread the word about this silent disease and help more people stay in the game of life.

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