Another Rare Disease Delayed Diagnosis: Extra Adrenal Pheochromocytoma

At Rare Disease in Washington DC, we talked with Brian Wood about the years of being unable to properly get a diagnosis of extra adrenal pheochromatocytoma.

As Brian explains in this interview, the years of high blood pressure, emergency visits, seizures, sporadic episodes of excessive strength and fatigue were not relieved until he was able to get a proper diagnosis and have the tumor surgically removed.