For information about NF1 and the research being done at UW-Madison to discover more about this disorder, click here: https://news.wisc.edu/nf1/
- When Mackenzie was adopted by Michelle and Larry Britzman, they didn’t know much about the genetic condition she was born with, called NF1. But they’re discovering more about it thanks to research at UW–Madison and the treatment she receives at UW Health. Mackenzie wants people to know she is just a normal kid.

Keynote Speaker Kenneth Rudd Shares His Story About Living with Neurofibromatosis Type 1 at the 2019 NYU Langone Health Neurofibromatosis Patient Forum

Learn more about NYU Langone’s Perlmutter Cancer Center: http://nyulangone.org/location....s/perlmutter-cancer-

Herbert B. Newton, MD, FAAN, outlines the risk of developing malignant peripheral nerve sheath tumors and the role of multidisciplinary team management for PNs in NF1.

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In this video, Kate answers a question about NF1 and autism spectrum disorder.

Do you have a question about neurofibromatosis? Ask Kate!
This video answers questions left for Kate on this video:
https://www.youtube.com/watch?v=URgoi...

Kate Kelts, RN, BSN, is the Patient Support Coordinator for the Children's Tumor Foundation. Submit your question in the comments below, or email Kate at kkelts@ctf.org. Click here to subscribe, and click the bell so that you receive alerts when new videos are posted: https://www.youtube.com/user/ctforg?s...
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Note that CTF is not a medical center, and we cannot give direct medical advice. This video series is for informational purposes only, and is not a replacement for diagnostic or medical care.

In many ways Maurice Simpson is just a regular guy who works hard and loves his wife and children. But there's something about Maurice that sets him apart from everybody else. Since childhood, he's been disfigured by massive facial tumors caused by Neurofibromatosis. Amazingly, an anonymous donor has offered to pay for surgery - is there too much at stake for him to have a brand new face?

'Medical Anomalies' is an extraordinary series documenting the struggles and accomplishments of a number of unique human beings with exceptionally rare medical conditions.

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Charlie and Max have both been diagnosed with Neurofibromatosis Type 1 (NF1), a genetic condition that can affect each person differently. It impacts 1 in every 3,000 births.

The "Good Day Philadelphia" team breaks down the latest local, regional and national news, along with information on business, entertainment, sports, weather, traffic and more. It's everything you need to have a good day!

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