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স্বয়ংক্রিয় চালু
Living with cardiac amyloidosis | Keith's story
00:01:44
Living with cardiac amyloidosis | Keith's story
0 ভিউ . 06/06/25 administrator
Living with Transthyretin Amyloidosis (ATTR)
00:03:46
Living with Transthyretin Amyloidosis (ATTR)
0 ভিউ . 06/06/25 administrator
NCI Minute: Study Finds Promising Results for Treating Anal Cancer in People Living with HIV
00:01:29
NCI Minute: Study Finds Promising Results for Treating Anal Cancer in People Living with HIV
17 ভিউ . 03/09/25 administrator
Contemporary Management of Complex Vascular Anomalies - Randolph Lecture
00:54:30
Contemporary Management of Complex Vascular Anomalies - Randolph Lecture
4 ভিউ . 12/07/23 administrator
hATTR Amyloidosis - Greg's Journey: Living with hATTR
00:00:31
hATTR Amyloidosis - Greg's Journey: Living with hATTR
4 ভিউ . 11/23/23 administrator
The Coyle Family Story - Living with Hereditary ATTR (hATTR) amyloidosis
00:03:53
The Coyle Family Story - Living with Hereditary ATTR (hATTR) amyloidosis
12 ভিউ . 11/23/23 administrator
Living with Amyloidosis - January 2019 - Dan Lier
00:05:25
Living with Amyloidosis - January 2019 - Dan Lier
6 ভিউ . 11/23/23 administrator
David, living with Hereditary ATTR (hATTR) amyloidosis
00:03:20
David, living with Hereditary ATTR (hATTR) amyloidosis
4 ভিউ . 11/23/23 administrator
Living and Thriving After Treatment for Anal Cancer: Long-term follow-up after treatment
00:13:03
Living and Thriving After Treatment for Anal Cancer: Long-term follow-up after treatment
5 ভিউ . 10/15/23 administrator
Living and Thriving After Treatment for Anal Cancer: Long-term follow-up after treatment
00:13:03
Living and Thriving After Treatment for Anal Cancer: Long-term follow-up after treatment
16 ভিউ . 10/15/23 administrator
Part 2 - Anal Cancer: Living Life Four Months At A Time- Hatteberg's People TV
00:04:28
Part 2 - Anal Cancer: Living Life Four Months At A Time- Hatteberg's People TV
5 ভিউ . 10/15/23 administrator
Part 2 - Anal Cancer: Living Life Four Months At A Time- Hatteberg's People TV
00:04:28
Part 2 - Anal Cancer: Living Life Four Months At A Time- Hatteberg's People TV
6 ভিউ . 10/15/23 administrator
Living and Thriving After Treatment for Anal Cancer: Addressing Long-Term Treatment Side Effects
00:59:41
Living and Thriving After Treatment for Anal Cancer: Addressing Long-Term Treatment Side Effects
4 ভিউ . 10/15/23 administrator
Living with Breast Cancer
00:06:47
Living with Breast Cancer
7 ভিউ . 09/30/23 administrator
CUSTOM BREAST PROSTHESIS/ LIVING WITHOUT A BREAST/ MY BREAST CANCER JOURNEY
00:14:54
CUSTOM BREAST PROSTHESIS/ LIVING WITHOUT A BREAST/ MY BREAST CANCER JOURNEY
5 ভিউ . 09/30/23 administrator
Alexis Bittar x Jimmy Paul: Living Beyond Breast Cancer 2023 Campaign
00:11:04
Alexis Bittar x Jimmy Paul: Living Beyond Breast Cancer 2023 Campaign
7 ভিউ . 09/30/23 administrator
Prolactinoma: Living with a pituitary tumor & how I found out I had a prolactinoma.
00:16:13
Prolactinoma: Living with a pituitary tumor & how I found out I had a prolactinoma.
0 ভিউ . 09/10/23 administrator
Living with Stage IV Ovarian Cancer and Thriving
00:04:22
Living with Stage IV Ovarian Cancer and Thriving
3 ভিউ . 09/10/23 administrator
Living life after Ewing Sarcoma
00:15:44
Living life after Ewing Sarcoma
3 ভিউ . 09/10/23 administrator

TSC Alliance + Marinus Pharma: Living with tuberous sclerosis complex

1 ভিউ • 06/27/23
শেয়ার করুন
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administrator
administrator
সাবস্ক্রাইবার
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Shannon Grandia, a mother of three children living with tuberous sclerosis complex, and Chief Scientific Officer of Tuberous Sclerosis Complex Alliance Steve Roberds educate about TSC and their hopes for a brighter future.

Thank you TSC Alliance for your dedication to the patient community!

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ফেসবুক মন্তব্য

পরবর্তী আসছে

স্বয়ংক্রিয় চালু

Living with cardiac amyloidosis | Keith's story
00:01:44
Living with cardiac amyloidosis | Keith's story
0 ভিউ . 06/06/25 administrator
Living with Transthyretin Amyloidosis (ATTR)
00:03:46
Living with Transthyretin Amyloidosis (ATTR)
0 ভিউ . 06/06/25 administrator
NCI Minute: Study Finds Promising Results for Treating Anal Cancer in People Living with HIV
00:01:29
NCI Minute: Study Finds Promising Results for Treating Anal Cancer in People Living with HIV
17 ভিউ . 03/09/25 administrator
Contemporary Management of Complex Vascular Anomalies - Randolph Lecture
00:54:30
Contemporary Management of Complex Vascular Anomalies - Randolph Lecture
4 ভিউ . 12/07/23 administrator
hATTR Amyloidosis - Greg's Journey: Living with hATTR
00:00:31
hATTR Amyloidosis - Greg's Journey: Living with hATTR
4 ভিউ . 11/23/23 administrator
The Coyle Family Story - Living with Hereditary ATTR (hATTR) amyloidosis
00:03:53
The Coyle Family Story - Living with Hereditary ATTR (hATTR) amyloidosis
12 ভিউ . 11/23/23 administrator
Living with Amyloidosis - January 2019 - Dan Lier
00:05:25
Living with Amyloidosis - January 2019 - Dan Lier
6 ভিউ . 11/23/23 administrator
David, living with Hereditary ATTR (hATTR) amyloidosis
00:03:20
David, living with Hereditary ATTR (hATTR) amyloidosis
4 ভিউ . 11/23/23 administrator
Living and Thriving After Treatment for Anal Cancer: Long-term follow-up after treatment
00:13:03
Living and Thriving After Treatment for Anal Cancer: Long-term follow-up after treatment
5 ভিউ . 10/15/23 administrator
Living and Thriving After Treatment for Anal Cancer: Long-term follow-up after treatment
00:13:03
Living and Thriving After Treatment for Anal Cancer: Long-term follow-up after treatment
16 ভিউ . 10/15/23 administrator
Part 2 - Anal Cancer: Living Life Four Months At A Time- Hatteberg's People TV
00:04:28
Part 2 - Anal Cancer: Living Life Four Months At A Time- Hatteberg's People TV
5 ভিউ . 10/15/23 administrator
Part 2 - Anal Cancer: Living Life Four Months At A Time- Hatteberg's People TV
00:04:28
Part 2 - Anal Cancer: Living Life Four Months At A Time- Hatteberg's People TV
6 ভিউ . 10/15/23 administrator
Living and Thriving After Treatment for Anal Cancer: Addressing Long-Term Treatment Side Effects
00:59:41
Living and Thriving After Treatment for Anal Cancer: Addressing Long-Term Treatment Side Effects
4 ভিউ . 10/15/23 administrator
Living with Breast Cancer
00:06:47
Living with Breast Cancer
7 ভিউ . 09/30/23 administrator
CUSTOM BREAST PROSTHESIS/ LIVING WITHOUT A BREAST/ MY BREAST CANCER JOURNEY
00:14:54
CUSTOM BREAST PROSTHESIS/ LIVING WITHOUT A BREAST/ MY BREAST CANCER JOURNEY
5 ভিউ . 09/30/23 administrator
Alexis Bittar x Jimmy Paul: Living Beyond Breast Cancer 2023 Campaign
00:11:04
Alexis Bittar x Jimmy Paul: Living Beyond Breast Cancer 2023 Campaign
7 ভিউ . 09/30/23 administrator
Prolactinoma: Living with a pituitary tumor & how I found out I had a prolactinoma.
00:16:13
Prolactinoma: Living with a pituitary tumor & how I found out I had a prolactinoma.
0 ভিউ . 09/10/23 administrator
Living with Stage IV Ovarian Cancer and Thriving
00:04:22
Living with Stage IV Ovarian Cancer and Thriving
3 ভিউ . 09/10/23 administrator
Living life after Ewing Sarcoma
00:15:44
Living life after Ewing Sarcoma
3 ভিউ . 09/10/23 administrator