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Rare disease keeps sufferers in the shadows

4 Görünümler • 06/27/23
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They're known as 'Children of the Moon' -- youngsters struck with the genetic disorder 'xeroderma pigmentosum', which makes exposure to sunlight potentially fatal. Restrictions on movement mean many struggle to live normal lives. But a school in France has been making some changes to accommodate one boy living with the rare condition.Duration: 02:12

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Otomatik oynatma