Rachel's story | 20 years living with incurable cancer (GIST sarcoma)

Rachel has been living with rare, incurable sarcoma for over 20 years. In this video, she shares her story.

After being diagnosed with GIST (gastrointestinal stromal tumours) when she was 15 years old, she immediately went on palliative (comfort) care. She's now 35 years old and has spent the past 20 years living with GIST. She's tried various treatments to help manage her cancer, including getting 90% of her stomach removed.

In 2017, her doctors suggested genome sequencing to better understand her cancer. The results of the test gave her some new insights on treatments, as well as her risk factor for developing two other rare cancers.

She uses her TikTok (@thatgistcancergirl) to spread awareness and share her cancer journey with others.

You can read her story here: https://bit.ly/3u7v4CV

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