My baby has an overgrowth syndrome: Beckwith Wiedemann.
Hello & welcome to my channel 🤍
I hope whoever is finding this video today realizes that you are not alone and that we can get through hard things. A diagnosis is just the first step but through informing ourselves we can become better equipped to handle this journey for our babies.
Beckwith Weidemann Syndrome is just one of many rare overgrowth syndromes. My hope in sharing about my daughters diagnosis is to inform people, help another mama out who is just starting out with this BWS diagnosis and to reduce the stigma of big babies with large tongues.
A great channel to learn more about BWS & see other families stories: https://youtube.com/@BWCFI
Video about what BWS is: https://youtu.be/my0zhvCe9HY
Finding out my daughter had an Omphalocele: https://youtu.be/CTocWakORTE
Follow me on TikTok: jessssicadanielle
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