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I Thought It Was Anxiety — But It Was Cancer - Alexis | Rare Cancer | The Patient Story
00:18:05
I Thought It Was Anxiety — But It Was Cancer - Alexis | Rare Cancer | The Patient Story
1 意见 . 07/04/25 administrator
Genetic testing helped Art Still to survive amyloidosis | stenosis | atrial fibrillation
00:17:13
Genetic testing helped Art Still to survive amyloidosis | stenosis | atrial fibrillation
1 意见 . 06/06/25 administrator
Amyloidosis Genetic Counseling - What You Need to Know
00:18:56
Amyloidosis Genetic Counseling - What You Need to Know
1 意见 . 06/06/25 administrator
Sam Hyde MDE Christian Rap rare full video
00:04:57
Sam Hyde MDE Christian Rap rare full video
0 意见 . 06/06/25 administrator
Joe Nester x Rare of Breed - Faithful To Your Promise (Official Music Video)
00:03:21
Joe Nester x Rare of Breed - Faithful To Your Promise (Official Music Video)
0 意见 . 06/06/25 administrator
Rare of Breed - THE DEVIL IS A LIE (Music Video)
00:03:58
Rare of Breed - THE DEVIL IS A LIE (Music Video)
0 意见 . 06/06/25 administrator
Rare of Breed - Don't Understand (Music Video)
00:03:13
Rare of Breed - Don't Understand (Music Video)
0 意见 . 06/06/25 administrator
Rare of Breed - HIGHS & LOWS (Music Video)
00:03:43
Rare of Breed - HIGHS & LOWS (Music Video)
0 意见 . 06/06/25 administrator
Rare of Breed - DIFFERENT (Music Video)
00:03:09
Rare of Breed - DIFFERENT (Music Video)
1 意见 . 06/06/25 administrator
Rare of Breed - TAKE A BREATH (Music Video)
00:03:08
Rare of Breed - TAKE A BREATH (Music Video)
0 意见 . 06/06/25 administrator
Rare of Breed - GOD KNOWS ft. SMO
00:03:08
Rare of Breed - GOD KNOWS ft. SMO
0 意见 . 06/06/25 administrator
The Paynes: Ready Or Not (1982) Rare Southern Gospel Album
00:28:50
The Paynes: Ready Or Not (1982) Rare Southern Gospel Album
0 意见 . 05/12/25 administrator
Wisconsin nonprofit donating care packages to veterans battling cancer
00:01:00
Wisconsin nonprofit donating care packages to veterans battling cancer
4 意见 . 11/26/23 administrator
Summit of Rare Diseases Special Topics in Amyloidosis & Fabry 2° Day
02:27:23
Summit of Rare Diseases Special Topics in Amyloidosis & Fabry 2° Day
4 意见 . 11/23/23 administrator
Hereditary Amyloidosis Thr60Ala ~ A Rare, Inherited Disease from North-West Donegal, Ireland.
00:01:29
Hereditary Amyloidosis Thr60Ala ~ A Rare, Inherited Disease from North-West Donegal, Ireland.
5 意见 . 11/23/23 administrator
Summit of Rare Diseases Special Topics in Amyloidosis & Fabry 2° Day
01:31:11
Summit of Rare Diseases Special Topics in Amyloidosis & Fabry 2° Day
1 意见 . 11/23/23 administrator
A Rare But Serious Condition : Understanding Cardiac Amyloidosis!! @uownurhealth
00:08:26
A Rare But Serious Condition : Understanding Cardiac Amyloidosis!! @uownurhealth
3 意见 . 11/23/23 administrator
Amyloidosis - Rare Disease Day 2011 My Story
00:04:28
Amyloidosis - Rare Disease Day 2011 My Story
5 意见 . 11/23/23 administrator
hATTR amyloidosis: The Importance of Genetic Testing
00:02:38
hATTR amyloidosis: The Importance of Genetic Testing
7 意见 . 11/23/23 administrator

Local man battling rare genetic syndrome finishes Coeur d'Alene half Ironman race

1 意见 • 06/25/23
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About a decade ago, James Sheppard was diagnosed with Birt-Hogg-Dube syndrome, a genetic condition that predisposes him to cancer, tumors, skin conditions, and respiratory problems.

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I Thought It Was Anxiety — But It Was Cancer - Alexis | Rare Cancer | The Patient Story
00:18:05
I Thought It Was Anxiety — But It Was Cancer - Alexis | Rare Cancer | The Patient Story
1 意见 . 07/04/25 administrator
Genetic testing helped Art Still to survive amyloidosis | stenosis | atrial fibrillation
00:17:13
Genetic testing helped Art Still to survive amyloidosis | stenosis | atrial fibrillation
1 意见 . 06/06/25 administrator
Amyloidosis Genetic Counseling - What You Need to Know
00:18:56
Amyloidosis Genetic Counseling - What You Need to Know
1 意见 . 06/06/25 administrator
Sam Hyde MDE Christian Rap rare full video
00:04:57
Sam Hyde MDE Christian Rap rare full video
0 意见 . 06/06/25 administrator
Joe Nester x Rare of Breed - Faithful To Your Promise (Official Music Video)
00:03:21
Joe Nester x Rare of Breed - Faithful To Your Promise (Official Music Video)
0 意见 . 06/06/25 administrator
Rare of Breed - THE DEVIL IS A LIE (Music Video)
00:03:58
Rare of Breed - THE DEVIL IS A LIE (Music Video)
0 意见 . 06/06/25 administrator
Rare of Breed - Don't Understand (Music Video)
00:03:13
Rare of Breed - Don't Understand (Music Video)
0 意见 . 06/06/25 administrator
Rare of Breed - HIGHS & LOWS (Music Video)
00:03:43
Rare of Breed - HIGHS & LOWS (Music Video)
0 意见 . 06/06/25 administrator
Rare of Breed - DIFFERENT (Music Video)
00:03:09
Rare of Breed - DIFFERENT (Music Video)
1 意见 . 06/06/25 administrator
Rare of Breed - TAKE A BREATH (Music Video)
00:03:08
Rare of Breed - TAKE A BREATH (Music Video)
0 意见 . 06/06/25 administrator
Rare of Breed - GOD KNOWS ft. SMO
00:03:08
Rare of Breed - GOD KNOWS ft. SMO
0 意见 . 06/06/25 administrator
The Paynes: Ready Or Not (1982) Rare Southern Gospel Album
00:28:50
The Paynes: Ready Or Not (1982) Rare Southern Gospel Album
0 意见 . 05/12/25 administrator
Wisconsin nonprofit donating care packages to veterans battling cancer
00:01:00
Wisconsin nonprofit donating care packages to veterans battling cancer
4 意见 . 11/26/23 administrator
Summit of Rare Diseases Special Topics in Amyloidosis & Fabry 2° Day
02:27:23
Summit of Rare Diseases Special Topics in Amyloidosis & Fabry 2° Day
4 意见 . 11/23/23 administrator
Hereditary Amyloidosis Thr60Ala ~ A Rare, Inherited Disease from North-West Donegal, Ireland.
00:01:29
Hereditary Amyloidosis Thr60Ala ~ A Rare, Inherited Disease from North-West Donegal, Ireland.
5 意见 . 11/23/23 administrator
Summit of Rare Diseases Special Topics in Amyloidosis & Fabry 2° Day
01:31:11
Summit of Rare Diseases Special Topics in Amyloidosis & Fabry 2° Day
1 意见 . 11/23/23 administrator
A Rare But Serious Condition : Understanding Cardiac Amyloidosis!! @uownurhealth
00:08:26
A Rare But Serious Condition : Understanding Cardiac Amyloidosis!! @uownurhealth
3 意见 . 11/23/23 administrator
Amyloidosis - Rare Disease Day 2011 My Story
00:04:28
Amyloidosis - Rare Disease Day 2011 My Story
5 意见 . 11/23/23 administrator
hATTR amyloidosis: The Importance of Genetic Testing
00:02:38
hATTR amyloidosis: The Importance of Genetic Testing
7 意见 . 11/23/23 administrator