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Genetic testing helped Art Still to survive amyloidosis | stenosis | atrial fibrillation
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Genetic testing helped Art Still to survive amyloidosis | stenosis | atrial fibrillation
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Sam Hyde MDE Christian Rap rare full video
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Sam Hyde MDE Christian Rap rare full video
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Joe Nester x Rare of Breed - Faithful To Your Promise (Official Music Video)
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Joe Nester x Rare of Breed - Faithful To Your Promise (Official Music Video)
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Rare of Breed - THE DEVIL IS A LIE (Music Video)
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Rare of Breed - THE DEVIL IS A LIE (Music Video)
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Rare of Breed - Don't Understand (Music Video)
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Rare of Breed - Don't Understand (Music Video)
0 ভিউ . 06/06/25 administrator
Rare of Breed - HIGHS & LOWS (Music Video)
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Rare of Breed - HIGHS & LOWS (Music Video)
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Rare of Breed - DIFFERENT (Music Video)
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Rare of Breed - DIFFERENT (Music Video)
0 ভিউ . 06/06/25 administrator
Rare of Breed - TAKE A BREATH (Music Video)
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Rare of Breed - TAKE A BREATH (Music Video)
0 ভিউ . 06/06/25 administrator
Rare of Breed - GOD KNOWS ft. SMO
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Rare of Breed - GOD KNOWS ft. SMO
0 ভিউ . 06/06/25 administrator
The Paynes: Ready Or Not (1982) Rare Southern Gospel Album
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The Paynes: Ready Or Not (1982) Rare Southern Gospel Album
0 ভিউ . 05/12/25 administrator
NCI Minute: Study Finds Promising Results for Treating Anal Cancer in People Living with HIV
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NCI Minute: Study Finds Promising Results for Treating Anal Cancer in People Living with HIV
15 ভিউ . 03/09/25 administrator
How can you tell if you have SKIN CANCER? #shorts #skincancer
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2 ভিউ . 11/26/23 administrator
Amyloidosis Bone Radiology #shorts
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4 ভিউ . 11/23/23 administrator
Summit of Rare Diseases Special Topics in Amyloidosis & Fabry 2° Day
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Summit of Rare Diseases Special Topics in Amyloidosis & Fabry 2° Day
4 ভিউ . 11/23/23 administrator
Hereditary Amyloidosis Thr60Ala ~ A Rare, Inherited Disease from North-West Donegal, Ireland.
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Hereditary Amyloidosis Thr60Ala ~ A Rare, Inherited Disease from North-West Donegal, Ireland.
5 ভিউ . 11/23/23 administrator

Living with a Rare Genetic Disorder #nf #nf2 #neurofibromatosis #shorts

2 ভিউ • 07/10/23
শেয়ার করুন
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administrator
administrator
সাবস্ক্রাইবার
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I have a rare genetic disorder called Neurofibromatosis Type 2. I have a few tumors on the brain and one in my ear. Sometimes I wake up and I just feel completely blah. Today was one of those days.

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ফেসবুক মন্তব্য

পরবর্তী আসছে

স্বয়ংক্রিয় চালু

Genetic testing helped Art Still to survive amyloidosis | stenosis | atrial fibrillation
00:17:13
Genetic testing helped Art Still to survive amyloidosis | stenosis | atrial fibrillation
0 ভিউ . 06/06/25 administrator
Best Treatments for Macular Amyloidosis On Face | Celestee Skin And Hair Clinic #shorts #skincare
00:02:23
Best Treatments for Macular Amyloidosis On Face | Celestee Skin And Hair Clinic #shorts #skincare
0 ভিউ . 06/06/25 administrator
Amyloidosis Genetic Counseling - What You Need to Know
00:18:56
Amyloidosis Genetic Counseling - What You Need to Know
0 ভিউ . 06/06/25 administrator
Living with cardiac amyloidosis | Keith's story
00:01:44
Living with cardiac amyloidosis | Keith's story
0 ভিউ . 06/06/25 administrator
Living with Transthyretin Amyloidosis (ATTR)
00:03:46
Living with Transthyretin Amyloidosis (ATTR)
0 ভিউ . 06/06/25 administrator
Sam Hyde MDE Christian Rap rare full video
00:04:57
Sam Hyde MDE Christian Rap rare full video
0 ভিউ . 06/06/25 administrator
Joe Nester x Rare of Breed - Faithful To Your Promise (Official Music Video)
00:03:21
Joe Nester x Rare of Breed - Faithful To Your Promise (Official Music Video)
0 ভিউ . 06/06/25 administrator
Rare of Breed - THE DEVIL IS A LIE (Music Video)
00:03:58
Rare of Breed - THE DEVIL IS A LIE (Music Video)
0 ভিউ . 06/06/25 administrator
Rare of Breed - Don't Understand (Music Video)
00:03:13
Rare of Breed - Don't Understand (Music Video)
0 ভিউ . 06/06/25 administrator
Rare of Breed - HIGHS & LOWS (Music Video)
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Rare of Breed - HIGHS & LOWS (Music Video)
0 ভিউ . 06/06/25 administrator
Rare of Breed - DIFFERENT (Music Video)
00:03:09
Rare of Breed - DIFFERENT (Music Video)
0 ভিউ . 06/06/25 administrator
Rare of Breed - TAKE A BREATH (Music Video)
00:03:08
Rare of Breed - TAKE A BREATH (Music Video)
0 ভিউ . 06/06/25 administrator
Rare of Breed - GOD KNOWS ft. SMO
00:03:08
Rare of Breed - GOD KNOWS ft. SMO
0 ভিউ . 06/06/25 administrator
The Paynes: Ready Or Not (1982) Rare Southern Gospel Album
00:28:50
The Paynes: Ready Or Not (1982) Rare Southern Gospel Album
0 ভিউ . 05/12/25 administrator
NCI Minute: Study Finds Promising Results for Treating Anal Cancer in People Living with HIV
00:01:29
NCI Minute: Study Finds Promising Results for Treating Anal Cancer in People Living with HIV
15 ভিউ . 03/09/25 administrator
How can you tell if you have SKIN CANCER? #shorts #skincancer
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How can you tell if you have SKIN CANCER? #shorts #skincancer
2 ভিউ . 11/26/23 administrator
Amyloidosis Bone Radiology #shorts
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Amyloidosis Bone Radiology #shorts
4 ভিউ . 11/23/23 administrator
Summit of Rare Diseases Special Topics in Amyloidosis & Fabry 2° Day
02:27:23
Summit of Rare Diseases Special Topics in Amyloidosis & Fabry 2° Day
4 ভিউ . 11/23/23 administrator
Hereditary Amyloidosis Thr60Ala ~ A Rare, Inherited Disease from North-West Donegal, Ireland.
00:01:29
Hereditary Amyloidosis Thr60Ala ~ A Rare, Inherited Disease from North-West Donegal, Ireland.
5 ভিউ . 11/23/23 administrator