Lauren Smith: Personal Story from the New Era of Patient Advocacy

Lauren Smith is a rare disease advocate who lives with ACPMP. One year after Lauren’s diagnosis, she is now a proud 22-year old rare disease advocate. Lauren has committed herself to making the ACPMP Research Foundation's mission, her own personal mission and believes that advocacy success is by doing one thing each day to do something for ACPMP. Her advice for new advocates is simple, “Any effort that you put forth to advocate for something that you believe in, no matter how small, is hugely heard.”

Get involved in rare disease advocacy by joining NORD’s Rare Action Network at rareaction.org