BWS Awareness Day 2020: Raising Awareness for Beckwith Wiedemann Syndrome

Happy BWS Awareness Day!

I am a mom to a real life superhero…he is big, brave, strong, and even has a heart of gold. What more could any mom ask for? We have so much fun celebrating Beckwith-Wiedemann Syndrome. We printed a book that he could share with his classmates. We also had fun decorating BWS butterfly cookies. He takes so much pride in sharing how God made him special. He knows he has some struggles, but we all do.

Our motto is: “In a world where you can be anything…BE KIND! I hope you enjoy his video. Leave a little comment to Jake if you would like to help him celebrate. We are so proud of him!

Please visit our website to download your own printable BWS book to personalize: http://www.mybwsbaby.com/a-day-in-the-life-of-bws