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Treatment strategies for Von Hippel-Lindau syndrome
Treatment strategies for Von Hippel-Lindau syndrome administrator 2 Pogledi • 2 godine prije

Ramaprasad Srinivasan, MD, PhD, National Cancer Institute, Bethesda, MD, discusses how to manage treatment for patients with Von Hippel-Lindau syndrome, and explains how treatment strategies have evolved over the years. Dr Srinivasan also highlights the surgical considerations for treating tumors in the kidney. This interview took place at the American Society of Clinical Oncology (ASCO) 2022 Annual Meeting in Chicago, IL.
Von Hippel-Lindau
Von Hippel-Lindau administrator 1 Pogledi • 2 godine prije

What is Von Hippel-Lindau syndrome?
What is Von Hippel-Lindau syndrome? administrator 3 Pogledi • 2 godine prije

Ramaprasad Srinivasan, MD, PhD, National Cancer Institute, Bethesda, MD, explains the basics of Von Hippel-Lindau syndrome. This interview took place at the American Society of Clinical Oncology (ASCO) 2022 Annual Meeting in Chicago, IL.
Neurofibromatosis: NF2 and the MISME Syndrome
Neurofibromatosis: NF2 and the MISME Syndrome administrator 2 Pogledi • 2 godine prije

Neurofibromatosis Type 2 is an inherited risk factor for brain and spinal cord tumors. It is not related to von Recklinghausen disease by genetics nor pathology. NF2 may best be remembered as:
Multiple Inherited Schwannoma Meningioma and Ependymoma neoplasms.
Neurofibromatosis Types 1 vs. 2
Neurofibromatosis Types 1 vs. 2 administrator 2 Pogledi • 2 godine prije

Learn about the differences between the two types of Neurofibromatosis in this fun and memorable video!
Hearing Loss and Rehabilitation in Neurofibromatosis Type 2
Hearing Loss and Rehabilitation in Neurofibromatosis Type 2 administrator 2 Pogledi • 2 godine prije

Expert Talk meant for patients & caregivers by by Simon Lloyd, Consultant ENT Surgeon at the NF Community Day 2022. You can learn about cochlear implantation and auditory brainstem implants and its results from a research view.

Support NF Patients:
https://www.nf-patients.eu/support/donation/

Ask Kate! All About NF2 Tumor Types
Ask Kate! All About NF2 Tumor Types administrator 2 Pogledi • 2 godine prije

This is episode of Ask Kate!, we discuss the different types of tumors associated with neurofibromatosis type 2, or NF2.
If you have a question about this video, please include it in the comments below, and be sure to subscribe to the Children's Tumor Foundation YouTube channel (and click the bell) to catch all of Kates videos!
To enable closed captioning, click the CC button.
Autumn finds hope at NIH and The Children's Inn for Neurofibromatosis Type 1
Autumn finds hope at NIH and The Children's Inn for Neurofibromatosis Type 1 administrator 2 Pogledi • 2 godine prije

Donate to support children like Autumn: https://bit.ly/2ShF6yf

Read more about Autumn and how your support of The Children’s Inn is making a big difference for her and NIH clinical research: https://childrensinn.org/a-pro....ud-nih-partner-in-re

Autumn is a vivacious 9-year-old with boundless energy and a big heart for people and animals. For the past seven years, the frequent Inn resident has also been an important partner in research for the National Cancer Institute.This April, Autumn’s clinical trial participation culminated in a major medical breakthrough: U.S. Food and Drug Administration approval of the first treatment for inoperable tumors caused by neurofibromatosis type 1 (NF1), an often devastating tumor predisposition disorder.

Radiation for Neurofibromatosis Type 2 (NF2)
Radiation for Neurofibromatosis Type 2 (NF2) administrator 2 Pogledi • 2 godine prije

#NF2. Support the development of a cure for NF2 at http://nf2biosolutions.org/donate

The webinar is focused on radiation treatment in NF2 rare disorder and features a panel of experts who share their knowledge and time with the audience. NF2 and radiation experts discuss the risks associated with radiation therapy and emphasizes the importance of looking for other treatment options first. The panel also discusses malignancy in NF2 patients, as well as the experience of 30 years of follow-up in UK centers that collect all NF2 patients.

This webinar was organized by NF2 BioSolutions nonprofit thanks to your donations.
Who is NF2 BioSolutions? We are a patient-led non-profit organization (Tax-ID 83-0940046) seeking a cure or preventative treatment for NF2 by vigorously supporting and advancing existing and next-generation biomedical technologies, such as gene therapy and immunotherapy. We are supporting more than 10 research labs thanks to your support.
We envision a world where those living with NF2 will have access to cutting-edge solutions to live full and productive lives, free from daily physical and emotional pain or suffering.
Support the development of a cure for NF2 at http://nf2biosolutions.org/donate
#curenf2.

This webinar has captioning in English, French, German, Spanish, Italian, Hebrew and Chinese. Let us know if you need another captioning language. Email us at info@nf2biosolutions.org

Visit our website for more information:
https://nf2biosolutions.org/ev....ents/nf2biosolutions

The Johns Hopkins Comprehensive Neurofibromatosis Center
The Johns Hopkins Comprehensive Neurofibromatosis Center administrator 2 Pogledi • 2 godine prije

The Johns Hopkins Comprehensive Neurofibromatosis Center is one of only a handful of centers in the world helping patients with neurofibromatosis 1 (NF1), neurofibromatosis 2 (NF2) and schwannomatosis. Learn how this multidisciplinary team of world experts treats patients with this syndrome across their lifespan. For more information: hopkinsmedicine.org/neuro/NF
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