Pheochromocytoma Paraganglioma Alliance Webinar Series - Financial Toxicity & Navigating Insuran

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administrator
07/08/23

Special thanks to Progenics, a Lantheus Company, for making this webinar series possible.

The information presented on this webinar is for educational purposes only and should not substitute the advice of your doctor(s) and medical team because they have in-depth knowledge of your medical history and current situation.

QUESTIONS:

38:59:  Is there something we can do as patients to have influence on treatments and testing or monitoring so that it is covered by insurance?

43:51:  Typically, are there any healthcare costs that don't apply to the out of pocket maximum?

45:50:  I have Colorado Medicaid for my 18 year old son.  We are having problems getting him approved for a surgery with a specialist in Texas for his rare heart paraganglioma.  Tips?

48:33:  When making decisions about what scans and treatments to get is there a way to know how much they will cost with insurance? Getting separate bills from doctors, imaging etc. is really hard to figure out.

50:02:  I have very bad insurance.   My doctor said that I shouldn't even bill insurance and pay out of pocket until my out of pocket maximum is reached.  Is this allowed? How do I know if this is a good option for me?

51:20:  I have been denied for a scan I was recommended to have.  Should I appeal through my insurance or ERISA?

52:55:  In general, will insurance cover costs received outside of the US for treatment that I can't receive in the country?

53:35:  We just went through an entire year of crazy medical bills with surgeries and treatment and scans. I didn't really look at all the bills and I'm pretty sure I paid on things that I shouldn't have.  Is there a way to go back and look at this?

57:24: I want to have a telehealth appointment with an out-of-state doctor.  Does it depend on where the doctor is located or where I am?

58:15:  Would you comment on straight Medicare and plan F? Should patients on this plan stay on it since it is grandfathered? Prices are rising.

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