Part 3 - Uterine Papillary Serous Carcinoma (UPSC) - My Journey With Endometrial Cancer

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09/30/23

This video is about my personal journey with uterine papillary serous carcinoma, a very rare form of endometrial cancer also referred to as UPSC or serous. This video continues to touch on chemo and immunotherapy drugs for UPSC along with radiation therapy and where to find clinical trials which I discussed briefly in part one of this series. There are 7 parts so far and I plan on doing more in the future. I must apologize for the overly loud music, I finally learned how to lower the volume by episode 6.

Here is a list of my tests and treatments with dates and you can find links to cancer resources below.
1.I was first diagnosed and had a hysterectomy in March of 2017 when I was 65, I am 70 now. Started Taxol and Carbo I believe in May of 2017 (6 cycles), then had radiation (30 treatments) which ended at the end of 2017.
2.April 2017: carbo/taxol x6cycles
Germline Testing: Sept 2017: 23 gene panel.
HER2 amplified reflex to FISH 2+equivocal
Somatic Testing: Oct 2018 - Foundation One
MMR Status: March 2017 Surgical pathology Normal IHC
Hormone Receptor: +ER/-PR. 7/26/2018
3. May 2018: carbo/taxotere/Herceptin x6
4. April 2019: atezolizumab on study (My Pathway at UC) x 2 cycles.
-While on treatment developed large PE and was on brief steroid taper
5. June 2019: doxil/Avastin x 7 cycles
6. Jan 2020: Abraxane x17cycles
7. May 2021: Laparoscopic ileocecal resection
8. June 2021-present: pembrolizumab (Keytruda)

Here are the links to websites and support groups that may be helpful.

National Comprehensive Cancer Network:
https://www.nccn.org
National Cancer Institute:
https://www.cancer.gov
Cancer Survivors Network:
https://csn.cancer.org/categories/ute...
Clinical Trials:
https://clinicaltrials.gov
Testing:
https://www.testing.com
Foundation Medicine :
https://www.foundationmedicine.com
Wigs
https://www.youtube.com/@TAZSWIGCLOSET

Facebook Support Group:
UPSC-Uterine Papillary Serous Carcinoma Group (must log in and join)

Links to other videos in this series:
Part 1 - https://www.youtube.com/watch?v=3pMdCcuQrH0&t=220s

Part 2 - https://www.youtube.com/watch?v=jAiGZlPWgjc&t=22s

Part 3 - https://www.youtube.com/watch?v=qiLGch-Hb8k

Part 4 - https://www.youtube.com/watch?v=J4ze1Kljk6I

Part 5 - https://www.youtube.com/watch?v=DvHNzH9os6s&t=116s

Part 6 - https://www.youtube.com/watch?v=Ov9cupLdmrU&t=4s

Part 7 - https://www.youtube.com/watch?v=PHdl5RBLIck

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